Over the years, I have had two separate sleep studies. Both were absolutely horrible experiences. I have insomnia anyway — since childhood — so that equipment simply made it horrible. I was freaking out. I think about 4:30 AM on the last one, they broght me some ambien, so I may have dosed a little bit between 5:00 and 5:30 AM, at which time they annoucned the study was over. Both studies said "severe sleep apnea". Of course, I don't know how they could diagnose that on about 30 minutes of sleep. Anyway, on both occasions I tried hard to use a CPAP for weeks. Those were about the worse 4 months or so of my life. Conclusion: If you want me to sleep any, I do not use the machine. If you want me to use the machine, I will get far, far less sleep than using it. I just cannot imagine how anyone can tolerate them? I have tried various masks including the little nose pillows. I find a comfortable spot and I feel air blowing in my eyes, which causes me so much anxiety. I was shamed — terribly shamed — by providers when I would tell them that I just cannot do it. Every single proivder now asks me about it and feel like they need to read me the riot act about what may happen if I don't use it. Nobody understands the situation — nor do they try. Yes, I am extremely tired many days, but less tired than trying the machine and getting so worked up about it every night. And, they wanted me to take it when I travel ?!?! Nope, not going to happen. Ever. My memories of wearing the mask — "I cannot wait to get this thing off so I can get a little bit of sleep". Frustrated as can be here.
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That is a hilarious mind picture Bernese! If you had come staggering out of a bar, I would imagine folks may have thought ET had landed. Did the study work out with the tester getting good, usable results? Do you wear a CPAP?
Probably didn't help that I was wearing a tee with the following: Life is like a bicycle. If you want to keep your balance, you must keep moving forward". At least, it was Rochester, MN. The sleep study produced usable results. I do wear a CPAP that has improved my sleep a lot. It did take months to get used to it.
Boy! That sounds just like my situation.
A great story! I hope that one is written down for the grandkids or other family member to break out from time to time. I am glad you have gotten used to the CPAP; I am a huge advocate as I know lots of stories about people who did not restart breathing during the night. One was a friend of a friend while I was awaiting my machine. Sure seemed like a sign to me!
My husband has been using a CPAP for years. His first sleep study was done in a sleep lab on the night of Sept. 10, 2001. He cannot sleep without the machine.
Hello @gman007 Gary…
Are you referring to my post?
Thank you for the condolences. I hope you find a happy solution to this.. it's no fun to suffer. I do too . . I'm hoping that to post about the positive side of the Dr care vs the negative side will be encouraging. I would suggest looking for help from going to the Mayo Clinic or a new Neurologist in your area. Does anyone have a recommendation for a sleep Neurologist? Where do you live Bax?
We all have Drs who don't listen to us or make us frustrated at times and I'm no exceptions .. so posting the positive view is encouraging while the negative brings us down more! Who agrees with this?
I think I was referring to tbaxter's post as mine was made 3 days ago.
Yes, I am positive, because I had not read your post until just now. Sorry for any confusion.
Hi,I'm feeling the same way like @bernese53 a2nd it started to hurt on the right lower side of mt nose and then I got two nose bleeds and that was like two weeks ago amd now the left lower part of nose is hurting again but I havent had any nose bleeds recently but the left side hurts a lot more then the right side did
What can I search up to heal it??