COVID vaccines and neuropathy

I'm sorry to hear.
It is good that they were honest about not knowing what your reaction might be. (Better than the standard reply of "it's better than getting Covid"). Lots of uncertainties and we are all a bit insecure re decisions I guess.

I’m glad to hear she hasn’t had lingering effects! (Although doesn’t sound like it was fun!). If my side effects resolved I may have considered second dose but since they haven’t after such a long time it makes me nervous

I am 5 weeks out from my first dose of Pfizer and still having new and increased neuropathy pain. It has gotten a little better but as bad as I want the booster I am scared to get it on top of my new pain. I also have an increase in my Tendinitis starting @4wks after shot. It’s been persistent where is in the past it would come and go and was much milder. Not sure if it’s related or not. I’m seeing a lot of people with neuropathy side effects from Pfizer and Maderma on here but not J&J. Has anyone had this side effect from J&J?

I can understand the reluctance to get a second dose when the first has caused such discomfort. I had a major inflammatory response to each dose, complete with resurgence of bursitis I thought was cured.
I still elected to have the second dose, which led to more inflammation.
Today I talked it over at length with my PCP and her response was that she had reacted as well due to her own chronic illness, but our discomfort paled in comparison to the long-haul syndrome she is seeing in many patients, including a 36 yo with a "mild case" who is now retired on disability due to heart and lung involvement and profound fatigue.
One RN daughter has a 16 yo student who now has heart failure, and her sister, also an RN, talks to long-haulers on the telemed line every workday, some of whom didn't even realize they had had Covid until after effects appeared.

Their collective advice to you is that Covid has many, perhaps as yet unknown, long term adverse effects. Get vaccinated to protect yourself, your family and friends. And, if vaccine side effects last longer than 4 weeks, contact your PVP and insist on being assessd/treated, whether for neuropathy, inflammation, or other issues.

Sue

I also got the 1st vaccine and had the side effects w/neuropathy. I was afraid but did go ahead with the second and the side effects for that were milder than the 1st. Still had some issues but not to the degree I had with the 1st vaccine. I am glad it is over and done with!

To all of you who wonder if the Covid vaccine and its side effects are worth it, you might want to read about the remarkable strides we have made against Covid-19 in the past 4 months: https://connect.mayoclinic.org/discussion/some-positive-covid-19-vaccine-thoughts-and-statistics/

I agree with you, it’s just hard to get the booster while still having pain from the first shot. If I knew it wasn’t going to be permanent, it would be a no brainer. Thank you for your insight. It did give me a lot to think about.

I’m glad you had a good outcome.

Because my immune system response to pfizer has reactivated by PN and led to further nerve damage in my feet and legs which has still not stabilized 5 weeks later I am certainly hesitant about a second shot and wondering whether it might be better to try and get the one shot adenovirus j and j vaccine for the second shot. Any advice welcome.

Sorry my PN not by PN