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COVID vaccines and neuropathy

Neuropathy | Last Active: Nov 14, 2023 | Replies (2164)

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@dhamil

I am 5 weeks out from my first dose of Pfizer and still having new and increased neuropathy pain. It has gotten a little better but as bad as I want the booster I am scared to get it on top of my new pain. I also have an increase in my Tendinitis starting @4wks after shot. It’s been persistent where is in the past it would come and go and was much milder. Not sure if it’s related or not. I’m seeing a lot of people with neuropathy side effects from Pfizer and Maderma on here but not J&J. Has anyone had this side effect from J&J?

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Replies to "I am 5 weeks out from my first dose of Pfizer and still having new and..."

I can understand the reluctance to get a second dose when the first has caused such discomfort. I had a major inflammatory response to each dose, complete with resurgence of bursitis I thought was cured.
I still elected to have the second dose, which led to more inflammation.
Today I talked it over at length with my PCP and her response was that she had reacted as well due to her own chronic illness, but our discomfort paled in comparison to the long-haul syndrome she is seeing in many patients, including a 36 yo with a "mild case" who is now retired on disability due to heart and lung involvement and profound fatigue.
One RN daughter has a 16 yo student who now has heart failure, and her sister, also an RN, talks to long-haulers on the telemed line every workday, some of whom didn't even realize they had had Covid until after effects appeared.

Their collective advice to you is that Covid has many, perhaps as yet unknown, long term adverse effects. Get vaccinated to protect yourself, your family and friends. And, if vaccine side effects last longer than 4 weeks, contact your PVP and insist on being assessd/treated, whether for neuropathy, inflammation, or other issues.

Sue

I also got the 1st vaccine and had the side effects w/neuropathy. I was afraid but did go ahead with the second and the side effects for that were milder than the 1st. Still had some issues but not to the degree I had with the 1st vaccine. I am glad it is over and done with!

I'm so sorry that your neuropathy and pain are increasing. This has been my experience as well. I find it very disturbing. I get your reluctance. For the 1st week after the reaction/shot, I questioned whether or not I should get the second dose. I am very clear now that this is not good medicine for my body. I do not intend to get any more of this vaccine. This is an important decision for folks who are hurt by it and each will have to weigh the possible benefits vs. risks. There is no medicine that is one size fits all.