Covid Vaccination and Hemoglobin Louisville

My son has hemoglobin louisville and I am unsure of vaccinating him for Covid 19 when his turn becomes available. I wonder if it is worth putting him through the process, if the efficacy will not be significant. There is not a lot of information regarding his condition so I really do not have much data to analyze.

Interested in more discussions like this? Go to the Blood Cancers & Disorders group.

Welcome to Mayo Connect, a community of people and their caregivers living with a wide variety of diseases and conditions, who support each other along the way. We try to be informed medical consumers, and our own best advocates in our care. We are not medical professionals, so not able to provide medical advice.

I have also looked, in all the usual places, trying to find an answer for you. When vaccines and drugs are tested, the first subjects are generally healthy individuals, followed over time by those with a variety of medical conditions. Since the Covid vaccines were brought to market as quickly as was safe to stop the pandemic and high rates of infection, the expanded trials have been ongoing, but don't get much press. For example, just recently an article was released indicating that it was tested among people with inflammatory conditions, and found to be safe, with any side effects being treatable.

Currently, it is recommended by the CDC that individuals with blood disorders receive the vaccine if deemed safe by their physician.

How old is your son, and how severe is his anemia?

Sue

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I would also like to welcome you to Mayo Clinic Connect. I would be worried about this too if my child had this blood disease and needed to have the vaccine. I agree with Sue that there is limited, reliable information available about autoimmune diseases and covid vaccines that are available now. One promising note is that there are a lot of research on-going and trials for different disease groups.

Not only is Hemoglobin Louisville an autoimmune disease but also a blood disease where his body is making immature red blood cells. I'm certain that you have a great Hematologist. What does he say? Has your son been vaccinated with any other type of vaccine and how did he fair?

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@sueinmn

Welcome to Mayo Connect, a community of people and their caregivers living with a wide variety of diseases and conditions, who support each other along the way. We try to be informed medical consumers, and our own best advocates in our care. We are not medical professionals, so not able to provide medical advice.

I have also looked, in all the usual places, trying to find an answer for you. When vaccines and drugs are tested, the first subjects are generally healthy individuals, followed over time by those with a variety of medical conditions. Since the Covid vaccines were brought to market as quickly as was safe to stop the pandemic and high rates of infection, the expanded trials have been ongoing, but don't get much press. For example, just recently an article was released indicating that it was tested among people with inflammatory conditions, and found to be safe, with any side effects being treatable.

Currently, it is recommended by the CDC that individuals with blood disorders receive the vaccine if deemed safe by their physician.

How old is your son, and how severe is his anemia?

Sue

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Thank you for the response. He currently does not have or need a hematologist per his primary doctors suggestion. He is a healthy child overall. He has had all of his vaccinations from birth til now, with no issues. But I am still concerned because his O2 saturation levels are in the 70% level and that is his normal. Yet actual Covid 19 has an impact on O2 saturation levels. So that leads me to wonder how his body would react to the vaccine.

REPLY
@sueinmn

Welcome to Mayo Connect, a community of people and their caregivers living with a wide variety of diseases and conditions, who support each other along the way. We try to be informed medical consumers, and our own best advocates in our care. We are not medical professionals, so not able to provide medical advice.

I have also looked, in all the usual places, trying to find an answer for you. When vaccines and drugs are tested, the first subjects are generally healthy individuals, followed over time by those with a variety of medical conditions. Since the Covid vaccines were brought to market as quickly as was safe to stop the pandemic and high rates of infection, the expanded trials have been ongoing, but don't get much press. For example, just recently an article was released indicating that it was tested among people with inflammatory conditions, and found to be safe, with any side effects being treatable.

Currently, it is recommended by the CDC that individuals with blood disorders receive the vaccine if deemed safe by their physician.

How old is your son, and how severe is his anemia?

Sue

Jump to this post

Thank you for the response. My son is 9 years old and he doesn't have anemia. His O2 saturation levels are in the 70% and it does not impact him in any way physically. He can do everything other 9 years old boys do. His percentage is his normal and hasnt impacted or triggered any other issues. Hence my desire to get as much information as I can.

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@concernedparent411

Thank you for the response. He currently does not have or need a hematologist per his primary doctors suggestion. He is a healthy child overall. He has had all of his vaccinations from birth til now, with no issues. But I am still concerned because his O2 saturation levels are in the 70% level and that is his normal. Yet actual Covid 19 has an impact on O2 saturation levels. So that leads me to wonder how his body would react to the vaccine.

Jump to this post

Covid vaccines are not a live virus, and mRNA vaccines do not behave in the body like the virus. Here is the explanation: https://www.cdc.gov/coronavirus/2019-ncov/vaccines/different-vaccines/mrna.html

VAERS data contains no reports of lowered oxygen sats as a result of any Covid vaccine.

You will need to consult with your pediatrician regarding your son.
Sue

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