Covid may be messing with my DRG Trial

Posted by lorirenee1 @lorirenee1, May 15, 2020

Hi all, Last night, my pain doc's nurse called me to possibly schedule my DRG trial for next week, but that she was still working on some things. She said she would call me back today, and now, she just told me that Covid Guidelines make me too old to have my trial at this time, but was still "working on it," whatever that means. I am 68, and the cut off age in Illinois, due to Covid, is 65. Us older people are considered at risk, and most likely, I would imagine, docs don't want law suits. Meanwhile, the nurse says she is still calling me back today, and to keep hopeful. My pain doc still wants to do it, but the surgical wing follows the law. Meanwhile, the tears are coming like a turned on faucet. I just had a third of a marijuana gummy, because it seems to not only help pain, but mood. I could use that right now. It takes about an hour for the gummy to kick in. What a way to live. Pain, high, more pain, more marijuana……and now, I am too old for a trial under Covid law. I will keep everyone updated. This sucks. Lori Renee

@jesfactsmon

I hear you Jim, and I am with you on knowing He is always right there.

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@jesfactsmon Hurray! My riding mower is up and running!

Jim

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@rwinney

@lorirenee1 Thank you my friend. One day closer to your June 11th date! 🌈🌟😁 Smiles all the way. XO

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@lorirenee1 I wish you the best of luck with your DRG trial tomorrow. Sending virtual hugs and positive thoughts your way for a successful outcome. 🍀
Be well~
Rachel

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@rwinney

@lorirenee1 I wish you the best of luck with your DRG trial tomorrow. Sending virtual hugs and positive thoughts your way for a successful outcome. 🍀
Be well~
Rachel

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@rwinney Rachel, thanks so much. Just got back from the trial about 15 minutes ago. way too soon to know anything. Area of lower back where wires were put in hurt. IPad for feet adjusted by Abbot rep, but it takes awhile to know what is up. Feet feel very contorted still, but pain seems less? I am so exhausted that i do not know for sure. Takes about 3 to 10 days to know if it will help. You will be at Mayo in a week. God, i hope they help you. You are just the kindest. I will write again…..Love to you, sweetest lady. Lori

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@lorirenee1

@rwinney Rachel, thanks so much. Just got back from the trial about 15 minutes ago. way too soon to know anything. Area of lower back where wires were put in hurt. IPad for feet adjusted by Abbot rep, but it takes awhile to know what is up. Feet feel very contorted still, but pain seems less? I am so exhausted that i do not know for sure. Takes about 3 to 10 days to know if it will help. You will be at Mayo in a week. God, i hope they help you. You are just the kindest. I will write again…..Love to you, sweetest lady. Lori

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😊

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@lorirenee1

@rwinney Rachel, thanks so much. Just got back from the trial about 15 minutes ago. way too soon to know anything. Area of lower back where wires were put in hurt. IPad for feet adjusted by Abbot rep, but it takes awhile to know what is up. Feet feel very contorted still, but pain seems less? I am so exhausted that i do not know for sure. Takes about 3 to 10 days to know if it will help. You will be at Mayo in a week. God, i hope they help you. You are just the kindest. I will write again…..Love to you, sweetest lady. Lori

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Lori you are in my and Linda's and many other's thoughts as you start this new journey. We are rooting for you to be benefited BIGTIME by this!!! You are brave, and you are a trailblazer. We are with you in spirit. You know we know how very hard this is for you. You know we know how much the pain that oppresses you saps the energy out of you and makes everything an unbelievable effort. If this produces positive results we will be SO SO SO happy for you. Get lots of rest and keep us posted when you can. All our best!

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@jesfactsmon

Lori you are in my and Linda's and many other's thoughts as you start this new journey. We are rooting for you to be benefited BIGTIME by this!!! You are brave, and you are a trailblazer. We are with you in spirit. You know we know how very hard this is for you. You know we know how much the pain that oppresses you saps the energy out of you and makes everything an unbelievable effort. If this produces positive results we will be SO SO SO happy for you. Get lots of rest and keep us posted when you can. All our best!

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@jesfactsmon @rwinney Hi Hank, Rachel, and all my fellow Neuropathy sufferers….First, Thanks for your kindness. Just that, lifts my spirits. I have been sleeping all day. Woke up with headache from the local anesthesia, and throbbing in lumbar spine, where wires were put thru the DRG nerve cells, close to the spine. No relief of feet pain yet. Perhaps, subtle differences. I can put my feet on the ground. I can never do that. My shoes feel less horrid. Just subtle change so far. As far as the procedure, the headache and lumbar spine pain are nothing at all, compared to foot pain. Very nothing in comparison. ABBOTT lab rep calls tomorrow, to adjust my foot ipad that controls each foot, and amps up or down, or whatever the hell they do. Gotta go back to sleep. That 's really it. I will keep you guys posted. Prayers will be welcome. God likes me. I know that……cause I love God. Love, Lori

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@lorirenee1

@jesfactsmon @rwinney Hi Hank, Rachel, and all my fellow Neuropathy sufferers….First, Thanks for your kindness. Just that, lifts my spirits. I have been sleeping all day. Woke up with headache from the local anesthesia, and throbbing in lumbar spine, where wires were put thru the DRG nerve cells, close to the spine. No relief of feet pain yet. Perhaps, subtle differences. I can put my feet on the ground. I can never do that. My shoes feel less horrid. Just subtle change so far. As far as the procedure, the headache and lumbar spine pain are nothing at all, compared to foot pain. Very nothing in comparison. ABBOTT lab rep calls tomorrow, to adjust my foot ipad that controls each foot, and amps up or down, or whatever the hell they do. Gotta go back to sleep. That 's really it. I will keep you guys posted. Prayers will be welcome. God likes me. I know that……cause I love God. Love, Lori

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@lorirenee1 So glad to hear from you today. I feel satisfied just knowing you've begun this new journey of hope. Wishing you a peaceful evening and looking forward to hearing more good stuff! Keep fighting. 💪🏼

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Hi, all my fellow Neuropathy Sufferers; This is Day 2 of my DRG trial. Yesterday, I had no relief for the feet at all, but the ABBOTT rep says that it can take a few days for it to start helping. The nerves in which the wires are routed in have been irritated due to the procedure, and therefore, it is common to not get any relief for a few days. Today, I have had my feet up on my coffee table for about an hour, without pain. That is a miracle. I have not been pain free for an hour for easily a few months. I am exhausted from the surgical procedure, but my back has stopped throbbing where the wires are. I have been awake for about an hour and a half, and I am beginning to need a nap; hey, I just had surgery! Anyway, thought I would share, and keep posting to let you all know what is going on. If this helps in any way, I am thankful Love to all of you, Lori

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@lorirenee1

Hi, all my fellow Neuropathy Sufferers; This is Day 2 of my DRG trial. Yesterday, I had no relief for the feet at all, but the ABBOTT rep says that it can take a few days for it to start helping. The nerves in which the wires are routed in have been irritated due to the procedure, and therefore, it is common to not get any relief for a few days. Today, I have had my feet up on my coffee table for about an hour, without pain. That is a miracle. I have not been pain free for an hour for easily a few months. I am exhausted from the surgical procedure, but my back has stopped throbbing where the wires are. I have been awake for about an hour and a half, and I am beginning to need a nap; hey, I just had surgery! Anyway, thought I would share, and keep posting to let you all know what is going on. If this helps in any way, I am thankful Love to all of you, Lori

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Lori that sounds very promising, your first pain free hour in months!!! Thanks for the update, if you listen very carefully you may hear some noises in the background, very faint. That would be Linda and I clapping and cheering wildly in the very great distance.😊

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@jesfactsmon

Lori that sounds very promising, your first pain free hour in months!!! Thanks for the update, if you listen very carefully you may hear some noises in the background, very faint. That would be Linda and I clapping and cheering wildly in the very great distance.😊

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@jesfactsmon I swear, Hank and Linda, the rainbow in all of this is meeting you guys. I really do not know what I would do without you!!!! The ABBOTT rep just adjusted my machine today, and made my shins and calves vibrate. Holy shit! I am wired for sound. Then I did some more adjusting on my foot Ipad, and it tuckered me out. Just learning this was enough for the day. Although I still feel like I have cement in the balls of my feet, I can move my toes. I never was able to move them before. They move kinda spazzy, but at least they are moving. And I have taken about half the marijuana i usually take. Kiss Linda, Hank. Linda, kiss Hank. That will make me smile. I will update when I have the energy again. God Bless the two of you. Lori

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@lorirenee1

@jesfactsmon I swear, Hank and Linda, the rainbow in all of this is meeting you guys. I really do not know what I would do without you!!!! The ABBOTT rep just adjusted my machine today, and made my shins and calves vibrate. Holy shit! I am wired for sound. Then I did some more adjusting on my foot Ipad, and it tuckered me out. Just learning this was enough for the day. Although I still feel like I have cement in the balls of my feet, I can move my toes. I never was able to move them before. They move kinda spazzy, but at least they are moving. And I have taken about half the marijuana i usually take. Kiss Linda, Hank. Linda, kiss Hank. That will make me smile. I will update when I have the energy again. God Bless the two of you. Lori

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Will do on the kissing, Lori, never a problem for us. Pretty exciting news coming out of Northern Illinois today, Woo-woo! Keep up the progress.

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@jesfactsmon

Will do on the kissing, Lori, never a problem for us. Pretty exciting news coming out of Northern Illinois today, Woo-woo! Keep up the progress.

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Hi all my fellow Neuropathy sufferers. This is day 3 of my DRG trial. Yesterday and today, the pain is bad. My ABBOTT rep did another calibration of my foot IPad, and explained that it is like getting just the right amount of medication to be effective. Interestingly, at first she raised the electric current, and today, she lowered it again. She says the nerves have to adjust to the wires and electricity. I may have to meet her and my Pain Doc tomorrow to have him help her. One thing that is noticeably better, is that my feet don't feel as odd in shoes, and my toes are wiggling. So there is hope. I cried a few times today, which I am sure helps nothing, but this is creepy stuff, and I had to let the stress out. As far as the surgery itself, each day I feel better. My back no longer throbs where the DRG wires were put in, and I am not as exhausted. It is not an awful procedure. But I am such a pain warrior anyway! Please. All prayers welcome. Many of them. I will write again, as I know more…..taking a nap now. Lori, with love to all…..

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