Covid and Flu jabs all done
I decided to have both jabs together and so glad I did. The nurse was about to tick the younger person box and was very complimentary when I gave my date of birth. So that was nice. My weaker left shoulder started hurting within an hour. Here we go I thought. Once home I did lots of windmill actions and some shoulder exercises with 1 kilo weights and that sorted the shoulder. I had an extra half mg of Pred ready for the morning just in case. The usual horrible side effects started around midnight but they only lasted about 8 hours. Luckily the flu side arm is fine so I can lie on it. Hopefully I can get back to the gym tomorrow. My Dobermann has been lying on the bed keeping me company and taking most of the bed of course. But she has gone off to her own bed now so she must know I am feeling better.
Interested in more discussions like this? Go to the Polymyalgia Rheumatica (PMR) Support Group.
A flare is manageable. Covid may not be. Get the vax !
So sayeth the docs, and common sense.
I wonder if I have rushed things. I started reducing from 30mg in mid July to 7.5 mg which I started Oct 13th. My family Dr (no Rheumatologist here) said to decrease to a level where pain is "manageable". My morning discomfort has increased (left hip, ribs, and thigh and right bicep and elbow) and I wonder if I should bump prednisone by 1mg to 8.5 instead? Any thoughts?
I have an appt for my flu shot Nov 5 and will get Covid shot for sure when due in December. In the last month Covid has really hit a lot of my neighbors. It seems to be a harsher strain of the virus. One neighbor has other health issues that were greatly exacerbated by getting Covid. One of her issue is a rheumatoid one and she is still stuggling after 3 weeks. I'm not taking any chances, I'm getting these shots and masking with KN95s when going out in public.
I do not know what is too fast or too slow, but it does seem from the various experiences that are documented here that more folks seem to have problems when they are going faster than others.
My rheumy initially said that if I followed her schedule, I would have no flares. I stuck with it, and it has proven to be true.
Have you had the tests to confirm that your PMR is in fact in remission ? SED and CRP ? If those are not normal I would not be tapering.
they think that is what set it off in me too! But I have had both COVID and FLu with no negative impact.
I started on 15mg and started exercising again after a month, just small amounts and light weights but it was a start. I had a problem when I went from 12.5-10mg as that was on the standard list of tapering I was given. Had to increase up to 11mg for 6 weeks then start dropping by 1mg every six weeks. Only waited 5 weeks on last taper and doing well on 8mg. Going to drop to 7.5 on the 3rd day of week 4 ready for 7mg the week after. My left shoulder does complain in the morning but a swim really sorts that out, I thought it would be impossible to swim front crawl again but I was actually faster then before PMR and all stiffness pain goes away. If your hip is playing up aqua jogging and cycling movements in a pool would help.
I wish ongoing tests were available here. I questioned it at the start and about bone density checks which make sense but for me in the UK I was emailed the tapering list and basically told to get on with it. The nurse was only doing her job but I always think prevention is easier than cure. There does seem to be a link with tapering too quickly so I will take longer when I reach 5mg and reduce by 0.5 each month all being well.
Thanks @tiateacake. I walk a lot every day, 3 to 5 kilometers. My early morning walk starts out feeling pretty stiff, but I push through and by the time I get back home I feel way better. The more I move the better I am. My late afternoon walks are more comfortable! I will be starting at the pool tomorrow as it was closed for maintenance.
It can be frustrating! I find it's a real balance between the right dosage and not overdoing it.
I bumped up to 8.5 mg yesterday, still very stiff today and wonder if i should just go back to 10 for another week. 🤷
I think I need to slow down the tapering. I am so anxious to get off the prednisone! My SED was never checked but my last CRP was back down to 2.2. So I figured it was ok to try to taper faster. I am wondering though why the SED rate was not checked. Is it as important in the diagnosis as the CRP?
Dogs are really great like that.
My rheumy relied on the SED to decide that PMR was in remission. At that point I was on 10 of prednisone. She announced that we were no longer treating PMR. Thinking back, this was her way of saying that we are not going to be adjusting the P dose just because you might have some pain because it is not PMR pain. She then issued the remaining taper plan…down 1 per month until 5, then down 0.5 per month.
I realized that this was going to be a 15-month exercise, so I specifically asked if I could go faster if I felt ok. Her answer was an emphatic NO !
It seems to be working, and my adrenals seem to be adjusting to the changes and producing adequate cortisol as the taper continues. Otherwise I would be having symptoms of adrenal insufficiency/prednisone withdrawal, which I am not.
Good luck. Having some seems to be necessary.