Anyone have "cough variant" asthma? Vocal cord dysfunction?

Posted by jko1 @jko1, Apr 8, 2019

Anyone else on the forum with cough variant asthma? How about vocal cord dysfunction or the two together?

I have struggled with cough variant asthma for many years. Recently I was also diagnosed with vocal cord dysfunction as well--specifically irritable larynx syndrome. I've had voice therapy, but I'm interested in other ways people are coping with the combination.

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Profile picture for orangetiger @orangetiger

I do have a cough with asthma and COPD and high IgE but wondering if anyone is taking Dupixent and what is the outcome?

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Hi @orangetiger - you might be interested in looking at this Mayo Clinic Connect discussion on that medication:

- Anyone have experience with Dupixent for asthma? https://connect.mayoclinic.org/discussion/asthma-and-dupixent/

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I do have a cough with asthma and COPD and high IgE but wondering if anyone is taking Dupixent and what is the outcome?

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Profile picture for clachow @clachow

@jko1 My 18 year old daughter is having the exact same issues and experience! Everytime we see a dr we get more confused, not clarified.

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@clachow - welcome to Mayo Clinic Connect. Sorry to hear that every time you and your daughter see a doctor, you get more confused and not clarified. How frustrating.

I believe you mean she has cough variant asthma and vocal chord dysfunction? If so, which doctor or doctors diagnosed those conditions for her? Does her primary care doctor have a suggestion for how to arise at an integrated treatment plan?

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Profile picture for jko1 @jko1

Thanks for the vocal cord dysfunction. My doctors sent me to speech therapy, which seems to be the most common treatment for vocal cord dysfunction. (Mine seems to be a variant known as irritable larynx syndrome.) Unfortunately, vocal cord dysfunction seems to be in the domain of ENTs, which asthma is in the domain of Pulmonologists. So far, the two groups aren't working all that well together on thinking through the interplay between the two and the appropriate treatments that best support both conditions.

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@jko1 My 18 year old daughter is having the exact same issues and experience! Everytime we see a dr we get more confused, not clarified.

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Neilmed came with packets and instructions and you can also Googleit, but basically I sterilized the bottle by boiling it, used sterile water and mixed in 1 packet, shook gently and followed the instructions. It helps clear the sinuses. You have to make sure everything is sterile- you can buy sterile distilled water or boil filtered water for 5 minutes I think. You don’t want to use plain tap water. When I was in bad shape I’d use it 4-5 times a day. If I feel fine I don’t use it. Always a good idea to check with your doctor.

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Profile picture for 5148branelly @5148branelly

@drsharon
It arrived today, so I’ll give it a whirl tomorrow!

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@5148branelly - how did it go using the plastic bottle rinsing tool you ordered?

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I’ll check it out.
Thanks!

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Profile picture for 5148branelly @5148branelly

I’ve had constant phlegm in my throat for 57 years. It developed as a result of allergy shots. The allergist shrugged when I asked him about it. Then he asked me about emotional or family problems. I was 16. He was an ass.
I have coughing type asthma and use a steroid inhaler plus a rescue inhaler. I use Mucinex DM and sudafed as needed, as well as Zyrtec.
The Mucinex helps a little but not much. Other drs. have nothing to offer.

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@5148branelly

Have you been tested for any type of immune deficiency? Having constant phlegm isn't right all the time. I have CVID-Common Variable Immune Deficiency, and I get a lot of sinus infections each year. So far this year, I have had 3-ear/sinus infections. Before treatment 6-8 a year. I was miserable. There are over 400 immune deficiencies. See an immunologist if you get worse or would like to get tested. I take infusions now once a week and my antibodies are on a permanent vacation, so I put new antibodies in my body. It does help reduce the amount of sinus/upper respiratory infections that I have. Or maybe see an Alternative Doctor-Functional Medicine. I use the netti pot a lot and Navage and they both help me. Hope things improve for you.

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Yes, I have the coughing asthma. However, at times, I do wheeze, but for the most part it is more coughing than anything else.

I do have 2 lung nodules, has anyone else here have the lung nodules? Mine are very small, just found this year. I do have shortness of breath, Immune Deficiency-CVID, ongoing cough, shortness of breath and chest pain at times. I have found Singulair has really helped my shortness of breath/asthma a lot. I started taking it 2 months ago.

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