Connect
Cost of Epilepsy AED's
With drug price reduction a key factor in this administration, all of us should write our congressman/woman, senators and copy RFK and let them know about our AED prices, especially for Brand name. For me: I was recently quoted $ 5,000 for 90 day supply of Lamictal and Keppra is just as bad. We need help ASAP. Even if only 100,000 of the approximately 3.5 million of those of us with Epilepsy in the U.S., this effort has got to get someone's attention.
Like
Helpful
HugInterested in more discussions like this? Go to the Epilepsy & Seizures Support Group.
Connect
There are several websites that provide discounts for prescription medication. Good RX is one of many. The price for 30 tablets of 100 mg generic Lamictal on Good Rx varied from $8 to $40 depending on which pharmacy you fill the scrip at. It doesn't solve all our drug costs but the drug discount websites can provide some help.
I agree we need to contact our representatives asking for help to control medical costs for all of us.
-
Like -
Helpful -
Hug
3 ReactionsI am sp sorry this is happening. I use scricptco. It has a 50.00 every three month membership fee. I take generic lamotrigine ER 100mg daily. A 2 month supply for me is 10.00. I use them because in the past my medicare advantage plans either refused to send me my medications or delayed filling them. I now have just medicare A and B. On Oct 1 my medigap plan begins. I should mention I am a retired nurse and like to discuss and work out a treatment plan with my doctors. For me that meant removing corporate medicare advantage plans from my health care. Plus me always researching. My health is my wealth
-
Like -
Helpful -
Hug
4 Reactions@royanthony
Have you considered switching from 2nd to 1st generation drugs?
Take care,
Jake
-
Like -
Helpful -
Hug
2 ReactionsI had no idea that one could experience such a large difference in price for a generic. Somebody is earning substantial income at the $40 price. I'll check on GoodRx for my Lamictal, but I'm sure they will charge in the thousands, as well. I appreciate your educating me, especially since my brain is not satisfied with a generic.
-
Like -
Helpful -
Hug
1 ReactionPlease educate me. What is a 2nd and 1st generation drug? Over 25 years and I've never heard the phrase. Thanks
-
Like -
Helpful -
Hug
2 Reactions@royanthony
Drugs were limited in 1966 when I was diagnosed.
First generation drugs are older medicines like,
Phenobarbital, 1912
Dilantin, 1926
Mysoline, 1954
Zarontin, 1960
Tegratol, 1962
Depakote, 1983
Some newer medicines that are second generation meds and include,
Keppra, 1999
Zonegran, 2000
Trileptal, 2000
Neurontin, 1993
Lamictal, 1994
Topamax, 1996
Lyrica, 2005
The above is obviously just a sample of the 30+ seizure medication's currently available.
Just because a drug is older doesn't make it bad and because a drug is newer doesn't automatically make it better.
Second generation meds generally have fewer side effects but not everyone suffers side effects.
I've mentioned this before but several years ago the fiancé of a man with seizures was taking three medications with continued seizures. He asked about his seizures. I replied and suggested he might ask his neurologist if Phenobarbital might be beneficial. It turned out he did mention it and the Neurologist put him on Phenobarbital and stopped the other three meds and he has been seizure free since.
I have also been on phenobarbital for nearly 60 years along with up to four additional medications, but currently only use Carbatrol and Phenobarbital.
Take care,
Jake
-
Like -
Helpful -
Hug
2 ReactionsWhat an education! I had no idea. I appreciate your time to reply. Lot of info.
-
Like -
Helpful -
Hug
1 Reaction