Cookie Bite Hearing Loss

Posted by staciej @staciej, Nov 16, 2020

My husband has a cookie bit hearing loss – he can hear low and high sounds; but misses everything in the middle. My voice falls into the middle range (or maybe it’s selective hearing, that is still out for debate 🙂 I’m curious if anyone here has the same hearing loss and if so, if you’ve found a hearing aid that helps in this range. His hearing aids help in the range; while also amplifying the lows and highs – which is extremely painful and gives him a headache. This means he wears his hearing aids on special occasions and important conversations. Otherwise, this investments sits in his hearing aid storage pouch. Looking forward to hearing about the experience of others, as this type of hearing loss is hereditary. Thank you!

@staciej Welcome to Mayo Clinic Connect. Your husband has "middle range" hearing loss. Due to this, when he has his hearing aids in all sounds except the "middle range" sounds are uncomfortably amplified. This makes wearing his hearing aids extremely painful and he only wears his hearing aids on "special occasions." Certainly this is difficult and you would like to be able to converse with your husband on a day-to-day basis.

You will notice that I have added your question to the Hearing Loss group, along with the ENT group. I did this so you could you connect with members like @julieo4 @ken82 @imallears @katherinebouton @smbritt, in the Hearing Loss group, along with members like, @nrd1 @ellienewfan in the ENT group.

May I ask what the vendor of the hearing aids has said about his hearing aids uncomfortable amplification of high and low sounds?

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Many aids having frequency adjustments in their apps. I am very soon getting new Phonak Paradise P90 aids and they have an app with adjustments for low, medium and high frequency. It would seem to me that this is what he needs. There are many that have this three settings for frequencies. He could turn down the low and the high and turn up the medium frequency range setting. What do ya' think?

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"Cookie bite" hearing loss is unusual. It requires a different fit than what is most typical. Hearing aids can only do 'the right thing' when they are fit for a person's hearing loss. That requires real ear measurement done by a skilled provider. Hearing aids are sold by a variety of providers; some with a lot more education and experience than others. AuD after a providers name indicates a doctorate level degree in audiology. HIS which stands for hearing instrument specialist, doesn't require a degree in most states. While we know some HIS are highly skilled due to quality apprenticeships and experience, that is not always how it is. MS-CCCA after a provider's name indicates a master's degree in clinical audiology. You can see what variety there is among providers.

I have no idea what kind of provider fit your husband's hearing aids, but it sounds as if they are not adjusted properly. Without proper adjustment, based on an audiogram which shows where hearing needs amplification and clarity AND where it doesn't, it would be easy to amplify sounds heard normally without amplification. Cookie bite audiograms require very different settings than sloping audiograms, the most common kind. Your husband should definitely use hearing aids, and also be concerned about preventing further damage in the dB levels where he hears well. Excess noise can cause more hearing loss. I encourage you to discuss this with the provider. If he gets no support, go elsewhere. This is why it's so important for new hearing aid users to use the 30 day trial period a provider is required to give them to figure out if they need something different. I hope this helps rather than confuses. There is help out there.

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@julieo4

"Cookie bite" hearing loss is unusual. It requires a different fit than what is most typical. Hearing aids can only do 'the right thing' when they are fit for a person's hearing loss. That requires real ear measurement done by a skilled provider. Hearing aids are sold by a variety of providers; some with a lot more education and experience than others. AuD after a providers name indicates a doctorate level degree in audiology. HIS which stands for hearing instrument specialist, doesn't require a degree in most states. While we know some HIS are highly skilled due to quality apprenticeships and experience, that is not always how it is. MS-CCCA after a provider's name indicates a master's degree in clinical audiology. You can see what variety there is among providers.

I have no idea what kind of provider fit your husband's hearing aids, but it sounds as if they are not adjusted properly. Without proper adjustment, based on an audiogram which shows where hearing needs amplification and clarity AND where it doesn't, it would be easy to amplify sounds heard normally without amplification. Cookie bite audiograms require very different settings than sloping audiograms, the most common kind. Your husband should definitely use hearing aids, and also be concerned about preventing further damage in the dB levels where he hears well. Excess noise can cause more hearing loss. I encourage you to discuss this with the provider. If he gets no support, go elsewhere. This is why it's so important for new hearing aid users to use the 30 day trial period a provider is required to give them to figure out if they need something different. I hope this helps rather than confuses. There is help out there.

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Hi Julie. He went to the University of Iowa Hearing Clinic, this has been over 10 years ago (I think, time flies!). I will do more research on other providers who may be able to assist with his cookie bite loss. At the time we purchased the hearing aids we trusted the University was the best place to go at the time. I'm guessing though, based on your comments, that the traditional or common settings were used nonetheless. We'll have to start saving up for another pair – he is just losing out on so much conversation during family time and as well as being unable to hear our 4 and 2-year-old grandkids speak to him. Thank you for your time in explaining the type of providers there are – the doctorate seems like the best way to go – just have to prove to us they know how to best accommodate for this type of hearing loss. Kind regards, Stacie Johnson

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@erikas

@staciej Welcome to Mayo Clinic Connect. Your husband has "middle range" hearing loss. Due to this, when he has his hearing aids in all sounds except the "middle range" sounds are uncomfortably amplified. This makes wearing his hearing aids extremely painful and he only wears his hearing aids on "special occasions." Certainly this is difficult and you would like to be able to converse with your husband on a day-to-day basis.

You will notice that I have added your question to the Hearing Loss group, along with the ENT group. I did this so you could you connect with members like @julieo4 @ken82 @imallears @katherinebouton @smbritt, in the Hearing Loss group, along with members like, @nrd1 @ellienewfan in the ENT group.

May I ask what the vendor of the hearing aids has said about his hearing aids uncomfortable amplification of high and low sounds?

Jump to this post

Thank you, Erica! Appreciate the responses. He purchased the hearing aids and has suffered since without getting the vendor or the provider involved. We'll be starting from square one again. I really worry about the volume levels he uses when watching television. Closed caption helps a lot there 🙂 I'll need to start doing more research – but glad for the direction the forum provided. Kind regards, Stacie Johnson

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@raykraemer

Many aids having frequency adjustments in their apps. I am very soon getting new Phonak Paradise P90 aids and they have an app with adjustments for low, medium and high frequency. It would seem to me that this is what he needs. There are many that have this three settings for frequencies. He could turn down the low and the high and turn up the medium frequency range setting. What do ya' think?

Jump to this post

Hi Ray. I'll check out the Phonak Paradise P90 aids – the app sounds interesting had the ability to turn the lows and highs down, while turning the middle hearing range up sounds like what he needs.

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