controversial medical diagnosis

Posted by jhue @jhue, 4 days ago

On and off stomach issues for over 10 years. Currently: upper mid and upper right abdominal pain, nausea, bloating, belching, burning lower and mid chest, and occasional pain in back, right shoulder. Working with a Mayo gastroenterologist since November 2024. Had a HIDA scan in 2018 that showed a 97% EF. Nothing was done at that time, and I didn't understand the results. After reviewing my medical record recently, raised this as an issue with my doctor who reported that 97% isn't an issue. I've had gallbladder ultra sound, upper endoscopy, colonoscopy, 2 CT scans and blood work - all normal. I read online that "overactive gallbladder (hyperkinetic)" is somewhat of a controversial diagnosis, but I'm wondering if there are other doctors in the Mayo system who typically consider this as a possibility or if this has been widely debunked by the medical community?

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I’m very interested to know if there is more to this theory as well! Thank you for posting all this information. I hope you start getting better soon! I’ve been the same way pretty much since I was 16 to about 26 years old it was mostly IBS diarrhea.
From the time I was 26 all the way till 42, I had chronic fatigue syndrome, but it was manageable. I had the best years of my life there!
In 2017 , I was in a motor vehicle accident that ended up leaving me with a fractured C5. While that was healing, I had my first colonoscopy in May 2018. We all know “the body keeps the score“ so my body fell apart. I was going into perimenopause had thyroid disorder. I finally got myself a little regulated. And then I went back to work, and then there was more trauma incurred there, as well as my father living with me for the last 8 years.
It’s been since late November 2022 so present day that I’ve been struggling horribly and fighting viciously.
So I would say 26 years old to 42 years old was great.
I’m just suffering so badly right now, myself. Burping, functional dyspepsia, acid reflux, inability to eliminate without enema’s present and prescription and stool softener. It’s getting so ridiculous!
I’m praying to God that we both start healing for the better. And for good!

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@pelala26

I’m very interested to know if there is more to this theory as well! Thank you for posting all this information. I hope you start getting better soon! I’ve been the same way pretty much since I was 16 to about 26 years old it was mostly IBS diarrhea.
From the time I was 26 all the way till 42, I had chronic fatigue syndrome, but it was manageable. I had the best years of my life there!
In 2017 , I was in a motor vehicle accident that ended up leaving me with a fractured C5. While that was healing, I had my first colonoscopy in May 2018. We all know “the body keeps the score“ so my body fell apart. I was going into perimenopause had thyroid disorder. I finally got myself a little regulated. And then I went back to work, and then there was more trauma incurred there, as well as my father living with me for the last 8 years.
It’s been since late November 2022 so present day that I’ve been struggling horribly and fighting viciously.
So I would say 26 years old to 42 years old was great.
I’m just suffering so badly right now, myself. Burping, functional dyspepsia, acid reflux, inability to eliminate without enema’s present and prescription and stool softener. It’s getting so ridiculous!
I’m praying to God that we both start healing for the better. And for good!

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Have you ever been tested for either scleroderma or sjogrens?
You seem to be symptomatic for both.

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Hida w/cck will tell whether your gallbladder is functioning or not. I assume you don't have any gallstones?
I only ask because numerous things can cause your symptoms. Have you had a EGD and/or esophageal manometry? I have achalasia of my esophagus and have a lot of the symptoms you describe.

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