1. < Brain & Nervous System

Constant dizziness/imbalance

Posted by Chester @chester, Jul 21, 2011

I'm a 47 year old male, and I've been experiencing a non-spinning dizziness/imbalance feeling for over ten months now. It all started after having a sinus and ear infection. I've had and MRI of the head, balance testing, blood tests for any deficiencies, heart tests, all of which are negative. I am suppose to see a neurologist next. Anyone else having similar problems?

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Joanne Narna | @mothermary1 | Dec 23, 2024
In reply to @blessedsista24 "I've been to the ENT dr and done a hearing test and A VNG test Both..." + (show)
@blessedsista24

I've been to the ENT dr and done a hearing test and A VNG test
Both negative and no crystals.
But constant ringing in my ears along with vestibular Hypofunction

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I have bilateral tinnitus and it comes with some horrible days. I sleep with the tv on all night. Sound machines do absolutely nothing for me.

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kdalda75 | @kndaustin71 | Dec 24, 2024
In reply to @uscdad07 "I did have the same exact thing. Testing was @ audiologist md was done and it..." + (show)
@uscdad07

I did have the same exact thing. Testing was @ audiologist md was done and it was found that had Menier’s disease.

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Menier's disease is a disease of exclusion, which means that in your differential diagnosis plan the physician should rule everything else out.

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ritacous40 | @ritacous40 | Dec 29, 2024

I have suffered from same thing for two years and thought it was because of debris on my left eye lens but this has been cleaned and I am still suffering imbalance and strange feeling in my eyes although I can see well.I probably have t same vestibular problems as I have suffered for this for 8 years. Waiting for CT or MRI here at home. This might help rule out other things.

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stevegrinstead | @stevegrinstead | Dec 30, 2024

Yes. It’s called ataxia. Your balance is controlled by the cerebellum part of your brain. It could be caused by a leak in your dura which allows blood to contaminate your spinal fluid, your brain stem and your cerebellum. Or a one time TBI. Unfortunately I had the leak in my dura. Mayo fixed the leak, but that doesn’t remove the iron deposits off of my CNS. So I have SS.

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1 reply
nsainato | @nsainato | Dec 30, 2024
In reply to @stevegrinstead "Yes. It’s called ataxia. Your balance is controlled by the cerebellum part of your brain. It..." + (show)
@stevegrinstead

Yes. It’s called ataxia. Your balance is controlled by the cerebellum part of your brain. It could be caused by a leak in your dura which allows blood to contaminate your spinal fluid, your brain stem and your cerebellum. Or a one time TBI. Unfortunately I had the leak in my dura. Mayo fixed the leak, but that doesn’t remove the iron deposits off of my CNS. So I have SS.

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I am told that I also have a leak and they will keep an eye on it. I have an appointemnt with a neurologist on Jan 13 25. I am anxious to find out about this what causes dura leak? Since you went through with this, tell me what kind of questions I should ask. Also, I am not good with abreviations, what is TBI and CNS.
I have dizziness seems like every December or January is this a coinsidence. They also told me I might have inflamation of the nerves in the ear. Christals is ruled out since I do not feel the room spinning. My problem is getting up in the morning and having no balance. And sometimes when I turn position in bed I feel like I am falling in a black abyss, they are calling that BPP... something. This year when it happened I also had nosia and vomiting and blood pressure went up.
You mentioned Mayo fixed the leak can you eloberate on that. How was the surgery?

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1 reply
tikigod18 | @tikigod18 | Dec 30, 2024
In reply to @chester "I'm not sure if the doctor's have ruled this out, but I haven't. I am suppose..." + (show)
@chester

I'm not sure if the doctor's have ruled this out, but I haven't. I am suppose to see a neurologist next, and am also trying to get an appointment at Mayo Clinic in regards to this problem. I will be asking about the infection possibility.

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Chester, what was your ultimate resolution?

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stevegrinstead | @stevegrinstead | Dec 30, 2024
In reply to @nsainato "I am told that I also have a leak and they will keep an eye on..." + (show)
@nsainato

I am told that I also have a leak and they will keep an eye on it. I have an appointemnt with a neurologist on Jan 13 25. I am anxious to find out about this what causes dura leak? Since you went through with this, tell me what kind of questions I should ask. Also, I am not good with abreviations, what is TBI and CNS.
I have dizziness seems like every December or January is this a coinsidence. They also told me I might have inflamation of the nerves in the ear. Christals is ruled out since I do not feel the room spinning. My problem is getting up in the morning and having no balance. And sometimes when I turn position in bed I feel like I am falling in a black abyss, they are calling that BPP... something. This year when it happened I also had nosia and vomiting and blood pressure went up.
You mentioned Mayo fixed the leak can you eloberate on that. How was the surgery?

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Thank you 🙏 for responding. However, please consult with Dr.Kumar and Dr. Marsh at Mayo Clinic Minnesota. They will confirm, there’s no cure for SS. I am so very thankful and grateful for the operation to stop the bleeding in my dura 2017. The operation does not stop the progression of SS, it does however slow it down. I was told that if I did not have the operation, because of the progressive nature of SS, that soon I would be completely deaf, unable able to get out of my bed to go to the bathroom.” Please see Clinic/SteveGrinstead. Just a few corrections. The operation was 8 hours not 4, and I never went back to Minnesota for follow up. SS is extremely rare. If I can be of help with others with SS, I hope and pray that I can be able to do so. Also, it helps me to help others.

Sent from Yahoo Mail for iPhone

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1 reply
nsainato | @nsainato | Dec 30, 2024
In reply to @stevegrinstead "Thank you 🙏 for responding. However, please consult with Dr.Kumar and Dr. Marsh at Mayo Clinic..." + (show)
@stevegrinstead

Thank you 🙏 for responding. However, please consult with Dr.Kumar and Dr. Marsh at Mayo Clinic Minnesota. They will confirm, there’s no cure for SS. I am so very thankful and grateful for the operation to stop the bleeding in my dura 2017. The operation does not stop the progression of SS, it does however slow it down. I was told that if I did not have the operation, because of the progressive nature of SS, that soon I would be completely deaf, unable able to get out of my bed to go to the bathroom.” Please see Clinic/SteveGrinstead. Just a few corrections. The operation was 8 hours not 4, and I never went back to Minnesota for follow up. SS is extremely rare. If I can be of help with others with SS, I hope and pray that I can be able to do so. Also, it helps me to help others.

Sent from Yahoo Mail for iPhone

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Thank you for responding. I am understanding correctly I should contact Steve Grinsted at Mayo, Minnesota? Not Dr Kumer or Dr Marsh? Thanks again and Happy New Year!

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1 reply
stevegrinstead | @stevegrinstead | Dec 31, 2024
In reply to @nsainato "Thank you for responding. I am understanding correctly I should contact Steve Grinsted at Mayo, Minnesota?..." + (show)
@nsainato

Thank you for responding. I am understanding correctly I should contact Steve Grinsted at Mayo, Minnesota? Not Dr Kumer or Dr Marsh? Thanks again and Happy New Year!

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Please google Steve GRINSTEAD/MayoClinc. They did an article on me and SS
In their newspaper. Dr. Marsh and Dr. Kumar are doctors at Mayo Minnesota who specialize in SS.

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