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Complex kidney lesion

Posted by suki1724 @suki1724, Apr 16, 2021

Hi, I have two mutations that predispose me to different cancers, and I have a complex kidney cystic lesion that they've been "watching" for a few years. It has grown and become more septated, I just had an MRI last week, and it's now 5cm x 4.5cm, and within my upper right kidney, going all the way into the collection system, but my kidney function continues to be ok. I'm wondering if anyone else has had something similar size/complexity wise and how they're doing. I'm having a virtual visit next week with my kidney doctor at Mayo in Rochester, and I was expecting just a message saying to keep up with watching and have another MRI next year, so I can't help but think they might want to do something about it this time!

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Ginger, Volunteer Mentor | @gingerw | Apr 27, 2021
In reply to @suki1724 "another update, I just got my bloodwork back from yesterday and my eGFR is now 65,..." + (show)
@suki1724

another update, I just got my bloodwork back from yesterday and my eGFR is now 65, down from 72 at the end of December. I sent a copy to the urology department at Mayo Clinic, so we'll see what they have to say, if anything

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@suki1724 There are factors to take in to account when our eGFR changes. Season of the year, the weather, changes in diet/medication, and importantly, our hydration level. A good doctor will look at the trend of the labs, not necessarily one date versus the next date. Do you have the eGFR prior to December?
Ginger

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suki1724 | @suki1724 | Apr 27, 2021
In reply to @gingerw "@suki1724 There are factors to take in to account when our eGFR changes. Season of the..." + (show)
@gingerw

@suki1724 There are factors to take in to account when our eGFR changes. Season of the year, the weather, changes in diet/medication, and importantly, our hydration level. A good doctor will look at the trend of the labs, not necessarily one date versus the next date. Do you have the eGFR prior to December?
Ginger

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Hi, Ginger, yes, it's been trending down over time, the highest was 114 a few years ago, and then lower on each blood test, and now at 65 it's the lowest it's ever been.

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