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At what point do I bring Hospice into the picture?

Posted by Kay @irvkay312, May 19, 2016

@colleenyoung As you know through my posts, I've had epilepsy, migraines, in 2009 Islet Cell cancer, chemo and radiation. To maintain my neurological stability I seek to understand the matter confronting me and then "continue to live my life as fully within my means as possible each day." Now, Monday, I'll meet with my Oncologist and team along with Palliative Care group; my question is "at what point do I bring Hospice into the picture?" Since, I'll have the latest CBC and tumor marker levels, in conjuction with the transition of a new anti seizure medication and depletion of another. Thank you, Kay Kramer

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Kay | @irvkay312 | Jun 4, 2016
In reply to @smness "@irvkay312 I thought I'd check in to see how you are doing. I am glad to..." + (show)
@smness

@irvkay312 I thought I'd check in to see how you are doing. I am glad to hear that you have Palliative care involved. You may also be working through many emotions during this time. Perhaps many ups and downs. I wrote about terminal cancer and grief on the Living with Cancer blog. You might find this information helpful. There are many people who have written in on the blog on this topic over the past few years since it was originally posted. Let me know if I can help at all. http://www.mayoclinic.org/diseases-conditions/cancer/expert-blog/terminal-cancer-diagnosis/bgp-20056361

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Thank you Sheryl for asking. I am presently adjusting to Hospice in a<br>learning way, as I told the nurse the other day. I believe that this is a<br>gift that living through my stages of epilepsy has provided me with--"the<br>ability to learn, understand and accept what the future days may hold. I<br>faced fear during my Grand Mal and Jacksonian years."<br><br>Today, I have no fear, worry, or anxiety about what I may have to endure<br>cancer wise. They (Hospice) set me up with pain medications and directions<br>on their use after calling them.<br><br>I can feel the small physical changes taking place each day. I also have<br>begun not to face worry, but to face a little instability insofar as my<br>neurological medical control. I'll fight those changes to the end in<br>maintaining my emotional stability; even though Islet Cell is a slower<br>growing cancer (as since 2009) "once it's in your blood as it is mine<br>through the mestasation to the liver, it's in your blood."<br><br>Whatever will be will be and I'll take one day at a time. With my keys of<br>"Faith, Hope and Perseverance."<br><br>Kay<br>

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