CLL, Spontaneous Regression

Posted by gardeningjunkie @gardeningjunkie, Oct 4, 2023

Diagnosed with CLL at age 50 from blood tests and bone marrow my disease progressed slowly for 10 years without treatment.
After 10 years my blood counts started improving and 15 years after my diagnosis no signs of CLL were present in my blood.
This is referred to as a Spontaneous Regression and rare.
Now at age 75 next month, I've stayed regressed for 10 years but my oncologist won't call it a cure and I only need to have blood taken once a year.
Has anyone else experienced this or know of others that have regressed spontaneously?

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Good morning, @gardeningjunkie You definitely have a garden fairy on your shoulder and must be over-the-moon happy with your news with this encouraging reversal/regression of your CLL! That is a rare event for sure. A quick search shows there have been only a few papers written in which this phenomenon has been reported.
Thank you for sharing this most amazing news! You’re a rare flower in the garden of life. ☺️

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Thanks Lori, there is nothing special about me so it's all the more confounding.

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@gardeningjunkie

Thanks Lori, there is nothing special about me so it's all the more confounding.

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Oh, contraire! You are special and your super power has been revealed! 🦹🏼‍♀️
I love your @name…gardenjunkie. What type of gardening? Veggies, flowers? All of it??

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My passion is in landscaping, focusing on flowers. I have no doubt my love of nature, which I expanded to the fullest after my diagnosis with CLL- hours daily, helped my recovery. I was grateful and appreciative of every minute I got to spend outside in this glorious world. Greatful for the time I have. Yet, I never had advanced to the stages where fatigue, dibiltating treatments or pain from CLL was an issue. When living with pain and fatigue fighting the depression and misery would be hard even if one was able to be active gardening.

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@gardeningjunkie

My passion is in landscaping, focusing on flowers. I have no doubt my love of nature, which I expanded to the fullest after my diagnosis with CLL- hours daily, helped my recovery. I was grateful and appreciative of every minute I got to spend outside in this glorious world. Greatful for the time I have. Yet, I never had advanced to the stages where fatigue, dibiltating treatments or pain from CLL was an issue. When living with pain and fatigue fighting the depression and misery would be hard even if one was able to be active gardening.

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Thank your for sharing these beautiful photos of summertime blossoms…as I sit here this afternoon with the temperatures struggling to get out of the 30s! The leaves are off the trees and winter isn’t far behind in the far north woods of Wisconsin.
Your landscaping is gorgeous! It’s so rewarding to spend time with the soil between your fingers out in the fresh air and sunshine. I love listening to my garden with the hum of the bees & birds and the wind playing with the leaves and petals. I agree with you that nature is healing and I’m so happy for you that you’ve been able to continue playing in your gardens!

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We have much in common. I think my hummers left yesterday. I'll take down my nectar feeders but I still have hundreds of flowers blooming to feed the migrating Monarch's and hummingbirds here in the Ozarks.

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@gardeningjunkie

We have much in common. I think my hummers left yesterday. I'll take down my nectar feeders but I still have hundreds of flowers blooming to feed the migrating Monarch's and hummingbirds here in the Ozarks.

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Our hummers must leave about a month earlier than yours. Pretty consistently ever year it’s about Sept 5h/6th that the last hummingbird comes through. By that time flowers/wildflowers are pretty much gone too. I always leave the feeders up another week just in case.
Lo and behold, last year we had one straggler that must have been late in her migration? She fed and sat on the feeder almost all morning. Then early afternoon she buzzed off on her merry way. Butterflies and most of the birds are gone too. The Juncos have arrived, which are our winter birds up here. So it’s just around the corner!
Enjoy the fluttery critters! ☺️

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Maybe I'll leave the feeders out another week for a straggler. I sympathize, at my age I'm not moving as fast as I used to either!!!

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After seeing your message, my initial reaction was one of disbelief, it's truly remarkable, and I'm genuinely delighted for you. Congratulations! As Lori mentioned, your superpower is at work!
You're indeed very fortunate! I'm from China, and here, when people hear good news from someone, they offer blessings and often say:接好运 (receive good luck). This phrase means that we hope good fortune will come to them as well.
I hope the same, and once again, thank you, gardeningjunkie! Wishing you everlasting good health!

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Hi, I was diagnosed with mbl which changed to cll. Now after 11 years with no meds it has gone into remission. dr says it's a miracle.

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