CLL complicated by autoimmune hemolytic anemia (AIHA)

Posted by gg17 @gg17, Apr 3, 2020

Anyone dealing with AIHA? I’ve had 4 infusions of rituxan. Got hemoglobin to 12, but other markers of hemolysis still off. What next? Geri

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cad43 | @cad43 | May 15 11:25am

In reply to @emg112253 "I have CAD Cold Agglutinin Anemia believed to be caused by indolent CLL. No treatment at..." + (show)

@emg112253 Are you taking folic acid? I was able to bypass all treatments by taking 1 mg a day. I had to do the research, because my first hematologist wanted to start me on Rituxen, and I refused and told her that I was going to try Folic acid first. My numbers started to improve, and thank God,

embee85 | @embee85 | May 30 6:41am

I also am on a 4-dose run of Rituxan to treat warm autoimmune hemolytic anemia associated with CLL. It doesn't seem to be working (after 3 doses.) My question is, since I also receive IvIG infusions monthly to help my immune system, how do they treat the anemia with immunosuppressants if Rituxan doesn't work? Stop the IvIG? I thought I had a good hematology team but none of this is explained to me.

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