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Clear cell carcinoma: Would you share what to expect in the future?

Posted by Daisy @hort37b460, Nov 30, 2025

I have stage 2 clear cell carcinoma with tumor from endometrial cancer. I’ve had chemo, radiation, brachytherapy before a radical hysterectomy and tumor removal. It’s a rare and aggressive cancer with no known cure.

I don’t know what to expect in terms of pain and suffering. Has anyone else had this experience? Would you share what to expect in the future?

Interested in more discussions like this? Go to the Gynecologic Cancers Support Group.

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Helen, Volunteer Mentor | @naturegirl5 | Feb 26 6:45am
In reply to @hort37b460 "@ffr and hope52 My story is almost identical to @ffr’s. I had the cancer treatments at..." + (show)
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@ffr and hope52

My story is almost identical to @ffr’s.

I had the cancer treatments at Dublin Kaiser Cancer Center.

They were wonderful, kind, professional and made me feel like they cared about me.

Even though I read everything I could to find out about what to expect with the chemo and everything I still didn’t feel like I understood it when I got there and they had a plan and I just went with it. I had 6 weeks of chemo with Cysplatin and radiation at the same time. With radiation I wore a loose dress with underwear only. I never had to deal with hospital gowns. I’ve got poor hearing so that was a blessing when the machines got noisy. The hard part was drinking all that water and having to hold it so long. Before the treatment started.

The two sessions of brachytherapy were easy.

Then they wanted me to have more rounds of chemo at 4x the initial dose. I decided not to continue with it.

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@hort37b460 Thank you for sharing your story here. I'm certain what you've shared will help others in our group.

One of my good friends had cysplatin for colorectal cancer. She told me that during a routine visit with her orthopedic surgeon (she had a total hip replacement several years prior to cancer) he noticed the loss of sensation due to neuropathy in her legs and feet. He referred her to PT and now, about three years later she has some remaining neuropathy in her feet but overall the PT was very helpful for her.

I'd have to agree with you on radiation therapy. The hardest was filling my bladder with water just before pelvic radiation and holding it while I waited to be called in. It took me some time but I had it all down to a science. Like you, I found the two sessions of brachytherapy to be longer in duration but easier.

How are you doing now?

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