CKD Stage 4 and dialysis

Posted by ldrlaw @ldrlaw, Dec 10, 2022

I thought that your stage was based on your GFR. Mine is 29 so I thought I was in stage 4. When we saw our nephrologist, however, I think that he put in my creatinine number, as well as my GFR, into some little device and told me I was back in stage 3. Yay.

My husband also has severe CKD and we've been thinking that he would go on dialysis very soon because his GFR is 11, and I'd seen something that indicated that they generally start dialysis between 10 - 15 GFR. This particular doctor, however, says that he goes by how the patient is feeling - considering fatigue, loss of appetite and feeling just plain crummy. He said that he has a patient with a GFR of 6 for some time but that he hasn't started him on dialysis because the patient feels okay. I would wonder about this except the woman who presented the kidney education class we attended knew him and spoke very highly of him. I had to fight to get that class but it was worth it. Chuck totally changed his position of thinking he wanted hemodialysis so that now he wants peritoneal - made me very happy. I've told our nephrologist that I think every person who is facing dialysis should be offered this in-person class. We'd searched on the internet and watched U-tube videos but the in-person class was SO much better.

Interested in more discussions like this? Go to the Chronic Kidney Disease (CKD) Support Group.

Profile picture for gwladj76 @gwladj76

@dad0229 I am 68, stage 3b, eGFR was in the stage 5 area 2 1/2 years ago. My Creatin back then was 6+. For about 2 years, my Creatin was around 2.02 - 2.24. In the past 8 months, is has fallen to 1.89 and my eGFR is around 38. All other blood levels are normal. You talk about the dizzy - lightheaded feeling. I had that issue. For a time, it seemed to be blood pressure meds I was getting used to. Since my initial diagnosis 2 1/2 years ago, I've worked hard to get some walking in. At first, I was barely able to walk around our cul-de-sac 5 times. After about 8 days, I worked up to 10 trips around. Summer came, I made it a point to walk each day. Now, when it's summer, I can easily go 2 1/2 miles. I've even been out playing golf - though nowadays you're required to use a motorized cart. My dizzy, lightheaded feeling didn't completely disappear. Then my nephrologist switched my BP medicine and it got worse. My home check on BP revealed it to be as low as 78/59. Consulting with my nephrologist, he ordered me to cut the pills in half. I did that, my BP improved to 118/83. However, when visiting my primary doctor, I mentioned the dizzy feeling happening when I would stand from a sitting position, getting off the ground doing gardening, putting a golf tee in the ground, etc. He told me to do some counter-top grabbing (for stability) deep knee bends. Start with just a few and build-up to 10-12, try to do a couple of sets per day. Without knowing your complete situation, I'm not saying this will work for you, not saying it as a recommendation unless your doctor agrees, but it has REALLY helped my situation. I believe he referred to it as a type of edema, fluid buildup in the legs. The exercise strengthens the muscles so fluid is more easily removed from the area. My nephrologist has noticed only a very slight swelling in the ankles, but apparently that's enough to cause my dizzy feeling. Hope you find this helpful.

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@gwladj76

Thank you for your testimony, its a blessing. By the Mercy of God my kidney function has been stable for the last 7 yrs and gfr is 35 and creatine about 2,02, I also have diabetes type 2. I have been getting pretty good bp readings, hardly ever on the low side. I use to walk about 30m minutes straight a day, now if I do 30 minutes its in 2 sets of 15. I have been to cardiology, and neurology about this dizziness and they cant find anything. I have been to ent and audiology as well. I have been recommended physical therapy and it doesn't seem to help much. Also Wife passed away in October, we were married for 33 years, she had been on dialysis for about 15 yrs. I know ultimately its up to the Lord to deliver me from this dizziness issue, in the mean time I try to stay busy with the things of the Lord, and of course pray he will give my Drs wisdom in this matter. Thanks again for your response, may God bless you.

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Hey everybody I thought this discussion was about Stage 4 (CKD) and Dialysis. Neither apply to me at the present time so I thought it would be a quick read. I came across mentions of dizziness. This has applied to me in the past. I told my nephrologist about it. He had me change positions (lying down, sitting and standing) and took my blood pressure while I was doing this. He proclaimed that I had a condition he called orthostatic hypotension (drop in blood pressure when changing positions causing dizziness and light headedness. His solution was to adjust the dose of the blood pressure meds he has me on. Problem solved. He also checks my calves, ankles and feet for any swelling (edema) every time I have a follow up.

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