CKD stage 4
Hello everyone I am 41 years old and I wants to come on here a tell a bit of my story on how I found out I had kidney disease at such joung age . I had went to a follow up appointment and I was actually feeling pretty sick and tired and not feeling good about my self and I got blood work done and urine example as well . And this happened of the year of 2024 when I was told I had stage 3 of CKD and I was so devastated and also was my family members. I will always blame my primary doctor for not being responsible and letting me know about it at earlier stage .I could have saved my kidney from getting worse then what it is now . I personally think they should be held accountable for this thats going on with us who find out late when they are the professionals ones being our doctors. Now unfortunately I’m at stage 4 of CKD and is really frustrating to me I always fatigue, sick, nauseous, dizzy , throwing up not motivated for anything most of the times sadly. something I never had to go trough in my life I was a really healthy girl till this was smacked in my face by a new doctor I had got when i had move to a new area . And ever since then I been trying my best to be positive but there is days I wish I wasn’t around anymore 😔my life did a whole 360 in a matter of months . But God is good and he will always be there for his children and give us strength and comfort I hope everyone is blessed and please aske your doctors about anything remember SOME DONT CARE ABOUT US . Have a blessed day hugs🫂🤍🙏
Interested in more discussions like this? Go to the Chronic Kidney Disease (CKD) Support Group.
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@santiago84 Welcome to Mayo Clinic Connect! Many of us were surprised when we found out we were stage 3 of chronic kidney disease. As you read through the discussions here in the kidney support groups, you will find that many of us have been where you are at. It is a pretty much accepted fact that most doctors will not think too much about somebody being in stage 3 of kidney disease, and feel it is not time to be treated. And many of us will will also agree that that's not the correct approach to take! The reasons we develop kidney disease are many. It could be the result of side effects of medication, or a family genetic disease called polycystic kidney disease, or diabetes or high blood pressure that is not treated by our doctors. Have you found out what has caused your kidney disease? A big part of handling your situation right now is working at the underlying cause. And you'll see that most of us will agree that diet plays a big part in how we handle our situation. Closely monitoring sodium, potassium, phosphorus, calcium, and processed foods will go a long way to help us along and help us feel better. Moderate exercise minimal stress will also help.
Do you have any questions for me?
Ginger
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1 Reactionhello friend, it can be scary, i am stage 4 kidney failure. but i have been here for at least 4 years into failure. surprising even to my doctor. i was stage 3 when diagnosed years ago. lucky my dr tested me, as there are no early symptoms usually. i am not eligible for dialysis because i also have cancer. i am overweight , which can mess with some readings, according to my medical chart. my advice, change your thoughts every time u think of your kidneys. i have learned the brain can cause pain anywhere on the body. or stop pain. be around people, read book, enjoy music, get outside half hour per day, meditate, yoga etc. enjoy today.
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3 Reactions@annbelle I am curious why you feel you are not eligible for dialysis? I am a blood cancer patient, on treatment since August 2021. I am also an end-stage renal patient, on dialysis since August 2022. My kidney disease is not related to my cancer.
Ginger
hello friend, my kidney dr said i am not eligible, blood cancer may be different, i have breast and stomach cancer that has spread, so he said i am not in good enough condition, its in different parts of my body, now lost voice, probable thyroid cancer. sounds like you are very capable. no more chemo radiation or pain pills for me. 2 drs recommended gummies and i take the lowest dose, halps mood and pain and not addictive. bless you xox
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2 Reactions@annbelle keep you spirits up and have hope. It’s definitely scary dealing with different health issues but miracles do happen… Keep you faith; Faith without works is dead and we are here now to help each other endure. Have a blessed day!
Hi I'm 75 years old and had a similar experience. I went thru cancer for two years and a year later a Hemolotology doctor told me I was in stage 4 ckd when I had a Nephrogist for fifteen years visiting at least once a year who told me to just drink more water and my kidney was medium for my age. I was too devastated and asked why didn't you tell me. He said everyone comes in there has ckd. Totally acting consultant about the diagnosis from another doctor. I insisted on starting me on a particular drug and after the second visit of asking he finally did and I have been getting better and better all praises due to God. I have gone in four month efgr of 18 to 27. I changed my diet and now have a nutrition and a nurse to help me control my blood pressure and given ok by him to take garlic supplements. You will get better and may last a lifetime without dialysis or transplants. 🙌
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1 Reaction@lovely83 thank you, sitting in sun today in mich
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2 Reactions@drandolph1951 what. Garlic do you take? Brand, mg, form (tablets, capsule, liquid)?