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CKD stage 3 diet
Hello! My husband was diagnosed with CKD stage 3 about 6 weeks ago. I have lists of sodium and potassium values for most common foods, also got some renal diet cookbooks from the library, as well as from Amazon, and do a lot of checking out recipes online.
I tried to find a renal dietician, but there isn't one. Physician(s) nor hospital outpatient services have anyone to recommend, either. Of course, once you progress to the dialysis stage, there's a personal dietician available. But not before, at least here.
So: muddling through. Most, if not all recipes I''ve seen are heavy on boiling stuff, especially vegetables. I get that for carrots, beans, etc., but I've yet to find a reason why I shouldn't roast them in the oven, with olive oil, garlic, etc. Does the cooking method really make a difference?
Also: almost every recipe for CKD diet is super low in calories. Great for someone overweight, but with a BMI of 21.6 my husband does not need to lose weight. But instead of bulking up with healthy vegetables I'm stuck with increasing carbs (rice, pasta), since vegetables contain quite a lot of potassium.
Lastly: leaching potassium out of potatoes: online recommendation is small pieces, lots of warm water, rinse and replace frequently, room temperature. Specially bought cook book by renal dietician says cold water, fridge, overnight (which internet says is the least effective method). Any comment? This is for potatoes destined to be roasted, not mashed.
Sorry to carry on, but there's so much conflicting information going on. Perhaps someone who has dealt with this for a while has some hints or advice.
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HugInterested in more discussions like this? Go to the Chronic Kidney Disease (CKD) Support Group.
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Just lost about 8 months from side effects of Eliquis! Horrible migraines, vertigo, dizzy spells up to 3-4 times a day! Gotta do the research. NIH website for research! Drugs.com for medication as they pull data from 3 huge data bases!
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@kndaustin71 and @lizzabeth I also have kidney disease (eGFR 36-41) and after doing Tymlos and 4 months of Evenity, did Reclast but at a 20% dose, with one hour IV hydration and infusion of the 1mg over a whole hour. Second time the IV hydration diluted the Reclast and infusion was one hour. These measures protected my kidneys.
I have 7 spinal fractures which are painful, permanently, and disabling. I will tolerate quite a few side effects to improve my bones. Tymlos took me from severe to borderline. I am sensitive to meds and got onto it because the injection pen has adjustable dosing. I started low and moved up slowly to get my body to adjust. I never took full dose and stopped at 7/8 of the full dose but still had 20% gain in spine and 9% gain in hip. I hope you might consider Tymlos! I an "locking in" with low dose Reclast but not continuing past two 1 mg infusions.
Many posters on Connect are doing Evenity without significant side effects. If you read the actual studies on cardiovascular effects, they are less concerning. For instance there was no difference with placebo and small difference with alendronate possibly because alendronate is protective. Studies are FRAME and ARCH.
New here and trying to find someplace to answer a question on Magnesium. I am using a cream for my neuropathy called Mama bear it contains Magnesium Cloride. I asked my doctor if i could use it. He said yes but find out how much Magnesium is in it. I have asked the company but haven;t gotten an answer. I just started it yesterday. My Magnesium count is good per the doctor. This cream is absorbed into the skin. Will it cause me to get too much magnesium in my system? I also just started on Farxiga as I am ckd3 with a GRF of 35. Since i can't get an answer from the company can anyone help...I need to try it a week to see if it will help. Used it 2x yesterday and i did see a little relief.
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1 Reaction@bb76 are you taking magnesium supplements? I take magnesium orally for my heart- 300-600mg/day. I don't use Epsom salts!
Oh wow...I do use about a cup of epson salts a 3 times a week to soak my foot. but the Magnesium I am tallking about comes in a cream for my foot. I can't get an answer to that question from the company...they claim all the ingredients are safe. The magnesium in it is magnesium cloride.
I would be more concerned about Epson salts 🙂 I mean if you take supplements, soak in Epsom salts (Magnesium) and use a topical mayyybbeee it could add up but it seems like a cream for your foot would be fine. If you are nervous, make sure you have calcium too- I was told. Would a nurse at your doctor's office or a pharmacist be reassuring? We are lay people here and I am only sharing my experience.
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1 ReactionIf it is important to the doctor and his rec's, you must tell the doctor you can't find the info and ask that he do that. He is the expert. You are in no shape to be the detective searching for answers, if it works and seems to help your symptoms, just take it till Dr says not to, and tell him you plan to do that. Another thing, nurses often know this type info better than doctors, and for sure a pharmacist will; I'd ask the pharmacist today !!! Good luck.
We have no renal dietitian available either. Even my specialist doesn't not have one. I have googled or looked at labels for everything I have put in my mouth, but my potassium will not come down. Most labels say % but that doesn't help. I am sorry about your husband. I have found that Matt's no sugar added applesauce works best for my breakfast at 6am as I am not a breakfast eater, but have type 1 diabetes and have to take insulin, so I eat. Had to find something could eat on the go as I still work and so crab 4 of the little cups, they have different flavors, but I stick to apple and it works. I also have a CGM in my arm that sets off alarms if I drop or go too high that has really helped. Problem is I only need 1.5 units of insulin for most of my meals. I used to have an insulin pump, but got divorced and couldnt afford the pump supplies without insurance so without a renal dietitian I have to guess at what falls in with the numbers. Got my labs today and still not where they should be, all got better, but without a dietitian I'm on my own. I dont trust those cookbooks because my specialist specifically said no potatoes no bananas and no prunes and those were some of my favorites. They have those in several of the recipes. I am having bathroom issues and even the high-dollar rx they told me to take didn't work. Any suggestions? I'm here if you need someone to talk to. It's a lonely life even though I have a wonderful finance and grown son, but they don't really understand and so I get lonely not having anyone to discuss things with. I have made up some simple recipes for stuffed peppers and quick microwave chicken breast. On Sundays I cook enough for the whole week as I'm not a cook and don't mind eating the same thing over and over. I'm poor and can't afford some of the things recommended to eat. Just all the specialists have almost bankrupted me.
Good luck and God bless.
Deborah Peters
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3 Reactions@dpeters1219 Welcome to Mayo Clinic Connect! As you peruse the conversations here, you will see that most all of us agree that diet is so important to the management of our chronic kidney disease [CKD]. Whether or not we have access to a qualified renal dietician, we can still take our own steps to educate ourselves on what will work for us.
Most of us follow the "eat for the numbers" idea. Limiting processed foods/meats, monitoring our intake of protein, sodium, phosphorous, potassium, calcium, and sugar. And let's not forget that is we have other health concerns going on, our diet plan may need to include that. For me, I have to watch for my gout diet, in addition to renal eating plan.
There are several sites to go to for ideas for diet:
Renal Support Network: https://www.rsnhope.org/nutrition-data-information-for-the-kidney-diet/
National Kidney Foundation: https://www.kidney.org/nutrition
It can take time to figure out what is best for you. We all get that. But the reward is feeling that you are [more] in control. And enjoying your food.
Ginger
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