CKD, high creatinine and... seizures?
Hi. Sorry this is gonna be long. This is for my dad.
Dad was diagnosed with CKD last April 2021. We've been controlling it by changing his diet as well as with prescribed meds.
Now, we've noticed that he has these maybe 15-30sec "attacks". It used to happen a few times a day, but now it's only once in a while. I've noticed that it seems to match with when he has either high creatinine and/or high potassium. Sadly I've no way to confirm the connection as we only do his blood labs every 2-3months.
The "attacks", I think they resemble simple partial seizures? He tends to lose focus, his hand either closes and opens or grips very hard, sometimes he chews. He knows you're talking to him but he can't seem to understand (just "hmm?") and he purposely breathes deep. He's aware of the deep breathing but not aware of his other actions.
I've seen a few google results about uremic seizures, but he had normal BUN and uric acid levels in his last results and he's having a few attacks recently. But also his potassium was 5.12 (normal 3.6-5.5) and creatinine is 1.75 (normal 0.5-1.3).
I'm honestly not very happy with our nephrologist for the way she dismisses everything as dehydration (she keeps pushing for dad to drink an electrolyte packet 3x/day, even though we've explained that it makes his legs cramp up at night, and his attacks happen more often).
I'm hoping that someone who maybe has experienced the same, suggest ideas on what's happening? Please let me know what you had to do to control/stop it. Thank you so much.