CIDP misdiagnosis, actually Anti-NF155 Nodopathy

Posted by uklisa17 @uklisa17, Apr 1 11:40am

After five years of believing my husband had CIPD a simple blood test showed he actually has AN. He has had multiple IVIG treatments that did not help due to misdiagnosis. He was tested and is a PML carrier so he is a tad reluctant to start Rituximab. Has anyone tried Ofatumumab? We have reached out to Dr. Dubeys office for help navigating this process. Any insight would be really welcome.

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