1. < Autoimmune Diseases

CIDP (Chronic Inflammatory Demyelinating Polyneuropathy)

Posted by sherlock @sherlock, Jan 6, 2019

I have been in treatment for CIDP going on 3 years. The treatment is IVIG infusions 2days a month. I also have small fiber neuropathy. I don't take any meds for this condition except CBD. CBD with lidocaine and some THC at bedtime. I can't take any of the first tier drugs like lyrica. Here's my question: Have any of you been treated for neuropathy with IVIG infusions?

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marquis113 | @marquis113 | Oct 13 3:44pm

I've had IVIG infusions for 10 yrs for low IG and it does nothing for my neuropathy.

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marquis113 | @marquis113 | Oct 13 3:46pm
In reply to @harley22 "I have just finished my second round of IVIG infusions, and I don’t feel any relief..." + (show)
@harley22

I have just finished my second round of IVIG infusions, and I don’t feel any relief in my neuropathy symptoms.
I will be having my third round ,middle of December, then I’ll get reassessed by my neurologist.
Has anyone felt any improvement, after their treatments?
I’m getting IVIG for CIDP.

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No relief and I get worse pain afterwards

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