Chronic severe nocturnal hypnic headaches

Hi, @timpowell84 - We've had a few other members mention using erenumab (Aimovig), like @hedjhog @msb18 @gothope @laluzhiker @quazar. I'd invite them to share any experiences using this medication for headache.

@timpowell84 - have you tried taking erenumab (Aimovig)? If so, has it made a difference with the severe nocturnal hypnic headaches?

Problem is I take way too much imitrex like up to 20 doses a month I'm afraid stroke is next

There is a new medication that FDA just approved in June called Aimovig.ask your Dr about it.just curious when you have your headaches where is the pain.mine is behind the eyes

@timpowell84 Your headaches sound absolutely horrible and debilitating. As a past migraine sufferer, I have to say that this sounds so much worse. It obviously does have similarities though since Imitrex is used for migraines also.
At least you have something that gives you some relief, unlike before these newer drugs were developed.
JK

My sleep deprivation has been going on for over four years now I take sleep aids but when I have my headaches it burns through them and I still wake up with excruciating eye pain

Thank you for your help I've been searching for a long time to find other people with the same symptoms or somebody who can help me rather than put me in a psych ward and give me psych meds that won't stop my headaches I wake up after 2 hours of sleep with excruciating eye pain it feels like somebody's pushing on my eyeballs from the inside

I take imitrex that's the only drug that I found that stops the headaches narcotics don't touch it morphine doesn't touch it Demerol doesn't touch it Dilaudid doesn't touch it I tried aimovig for 2 months it reduced for 2 months down to 6 then stopped working went back up to 23 headaches the next month

Hi @timpowell84. I add my welcome to you. You'll notice that I removed your phone number. Connect is a public forum and we recommend that people not share personal contact information for security reasons. Also, I moved your posts to this existing discussion about hypnic headaches so you can connect with others talking about similar issues, like @jana15 @lwatson612 @meme59 @shaylala and others.

It is unimaginable that you have been suffering from these headaches for 17 years. It must be impossible to function with such sleep deprivation.

I've been to Stanford headache specialist and Sacramento headache specialist they just want to lock me up and give me psych meds that won't take away my pain

Please help I suffer from hypnic headaches for the last 17 years up to 23 a month with 2 hours of sleep each night I have a headache I wake up with excruciating eye pain I suffer from severe sleep deprivation including hallucinations due to lack of sleep sleep aids don't help headaches burn right through them please help