1. < Joint Replacements
Profile picture for longhorn1

Chronic pain years after hip replacement

Posted by longhorn1 @longhorn1, Apr 17 8:58am

I’ve had constant pain since my hip replacement 4 years ago. After many tests, treatments, and doctor consultations I’ve been diagnosed with” Chronic neurogenic atrophy of the tensor fascia latae (TFL) muscle, with subtle swelling”. Has anyone had a condition like this and if so, how was it treated and what was the outcome?

Interested in more discussions like this? Go to the Joint Replacements Support Group.

Profile picture for bekifft
bekifft | @bekifft | Dec 12 12:23pm
In reply to @heavyphil "@bekifft yes, that’s always a problem when the best diagnostic tool you have is an XRay...." + (show)
Profile picture for heavyphil @heavyphil

@bekifft yes, that’s always a problem when the best diagnostic tool you have is an XRay.
As long as the implant is inside the femur, and the socket is located favorably in the pelvis, what can they say except ‘looks good!’
Perhaps other scans (MRI) could point to soft tissue issues which are extremely painful as well. You may have to get out of the orthopedic realm entirely and seek out a neurologist or pain management specialist who may be able to pinpoint where your real pain is coming from - remember, it could be coming from your spine or it could be muscular as a result of all the trauma you’ve been through. Just my opinion as to what I would do in your situation. Best,
Phil

Jump to this post

@heavyphil I have done MRI and EMG/Nerve conduction studies and they were normal. My quad is really stiff and my abductors are really weak. I'm trying to get botox to see if that will help loosen up my quad, which has been responding to dry needling. I've been to a few pain management doctors but they haven't been able to pinpoint the cause of the pain.

I'm seeing a physiatrist who is supposed to be one of the best around so we'll see what he says.

REPLY
1 reply
Profile picture for bug3
bug3 | @bug3 | Dec 12 1:33pm
In reply to @loriesco "@bug3 I had to take narcotic pain reliever to overcome the pain to do the exercise..." + (show)
Profile picture for loriesco @loriesco

@bug3 I had to take narcotic pain reliever to overcome the pain to do the exercise in order to rebuild. I also suffer from neuropathy because a dr neglected to do the bar surgery before the nerve roots were permanently destroyed. They have grown back dysfunctional and cause burning and numbness in my left leg. Strangely, extra iron pills. (Bronson Bisglycinate iron) and B vitamins or injections and two eggs in the morning made the neuropathy go away when the doctors failed to address the pain. I hope you find acceptance if you can’t find a resolution. Best wishes.

Jump to this post

@loriesco warm thoughts for you as well. Best wishes for a great year ahead. I will try to move forward too. Take care.

REPLY
Profile picture for heavyphil
heavyphil | @heavyphil | Dec 12 3:43pm
In reply to @bekifft "@heavyphil I have done MRI and EMG/Nerve conduction studies and they were normal. My quad is..." + (show)
Profile picture for bekifft @bekifft

@heavyphil I have done MRI and EMG/Nerve conduction studies and they were normal. My quad is really stiff and my abductors are really weak. I'm trying to get botox to see if that will help loosen up my quad, which has been responding to dry needling. I've been to a few pain management doctors but they haven't been able to pinpoint the cause of the pain.

I'm seeing a physiatrist who is supposed to be one of the best around so we'll see what he says.

Jump to this post

@bekifft You have certainly put in all the work to get to the bottom of the problem.
I’ve heard great things about physiatrists so I hope that’s the solution for you.
Phil

REPLY
1 reply
Profile picture for maclmarie
maclmarie | @maclmarie | Dec 13 1:34am

Replacemen in 2017, acetabular revised in 2018 and not ok. The Drs say the implant is good but I know the Anterior approach in 2017 did not work correctly- Had fluid early on, could not do PT because of pain which led to revised cup which was impinged in front and surrounded with adhesions in 2018. The 2nd Dr really tried to help but is now on west coast. I have seen other Drs and they will not treat, I need new labs- they fluctuate. I have medication, had many injections. The injections are diagnostic and short lived. Twice worked up for psoas and clearly told it's not the problem. I will not go through a release and loose the functionality that I do have- The pain is relentless, asking for new labs and for the dr(s) to biopsy and/or explore surrounding tissue.
They claim the implant is ok, then it must be me reacting to the implant.

REPLY
Profile picture for bekifft
bekifft | @bekifft | 1 day ago
In reply to @heavyphil "@bekifft You have certainly put in all the work to get to the bottom of the..." + (show)
Profile picture for heavyphil @heavyphil

@bekifft You have certainly put in all the work to get to the bottom of the problem.
I’ve heard great things about physiatrists so I hope that’s the solution for you.
Phil

Jump to this post

@heavyphil The physiatrist is supposed to be one of the best in town - he used to do the Portland Trailblazers and now he does the US Ski team. He recommended I start with three treatments of their focused Shockwave. It's a $100k machine that goes much deeper than the radial shockwave I tried before. I did my first treatment last week so we'll see how it goes. He also wants to do ultrasound next month to take a look at my stiff quad tendon and weak glute tendons.

REPLY
View MoreView Less
Please sign in or register to post a reply.