Chronic pain in every cell...

Posted by Vickie @vickiekay, May 7 10:01am

I have Rheumatoid Disease, scoliosis and osteoporosis. However even with Enbrel, Plaquenel, Prednisone, pain meds (and other meds), I have uncontrollable pain. It feels like all of my ligaments and tendons are three inches too short. I cannot stretch them out! I also feel jittery often….does anyone else have this combination? I am a patient at the Clinic, but there are so many things happening and I feel like each department is confused. I need a holistic view. Any advice is welcomed. Thank you in advance!

Liked by susanneloss

Hi @vickiekay, I imagine with everything that is going on now with COVID-19 that it's easy to feel frustrated with your care at the Clinic. I'm assuming you mean Mayo Clinic. Have you thought about using the Mayo Clinic patient portal to send a message to your care team or doctor to see if they can setup an appointment with a specialist to help you find a treatment that works better for you? Are you getting confusing messages about pain management or about dealing with COVID and coordinated care with your providers between departments?

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Thanks for your concerned reply, John. I am already working with several departments at Mayo, including Rheumatology, Neurology and the Pain Clinic. I seem to be an unusual case in spite of many attempts and lots of professional expertise to find answers. It has been a difficult journey for 30 years. Hopefully, the next year will bring some relief…I keep hoping! <3

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