Chronic pain in every cell...

Posted by Vickie @vickiekay, May 7, 2020

I have Rheumatoid Disease, scoliosis and osteoporosis. However even with Enbrel, Plaquenel, Prednisone, pain meds (and other meds), I have uncontrollable pain. It feels like all of my ligaments and tendons are three inches too short. I cannot stretch them out! I also feel jittery often….does anyone else have this combination? I am a patient at the Clinic, but there are so many things happening and I feel like each department is confused. I need a holistic view. Any advice is welcomed. Thank you in advance!

Interested in more discussions like this? Go to the Autoimmune Diseases group.

Hi @vickiekay, I imagine with everything that is going on now with COVID-19 that it's easy to feel frustrated with your care at the Clinic. I'm assuming you mean Mayo Clinic. Have you thought about using the Mayo Clinic patient portal to send a message to your care team or doctor to see if they can setup an appointment with a specialist to help you find a treatment that works better for you? Are you getting confusing messages about pain management or about dealing with COVID and coordinated care with your providers between departments?


Thanks for your concerned reply, John. I am already working with several departments at Mayo, including Rheumatology, Neurology and the Pain Clinic. I seem to be an unusual case in spite of many attempts and lots of professional expertise to find answers. It has been a difficult journey for 30 years. Hopefully, the next year will bring some relief…I keep hoping! <3

Please sign in or register to post a reply.
  Request Appointment