Chronic pain from Erythromelalgia
I’m currently struggling with ideopathic neuropathy, Fibromyalgia, hypotropic cardiomyopathy, chronic venous insufficiency, degenerative disc disease, and the latest things I was diagnosed with were Erythromelalgia and Reynauds. I’m in pain every single day. The pain in my hands is unbearable a lot of the time, especially at night. I have to wear compression gloves as tight as they’ll go, but sometimes that doesn’t even work. Needless to say, I hardly sleep at all with the pain from all of my ailments. My CRNP wants me to go to the Mayo Clinic to be evaluated by a doctor or doctors there. Everything that she thinks I have I don’t test positive for. She definitely thinks I have an autoimmune disorder, but she doesn’t know which one or ones it may be. I’m wondering what other people with one or more of the same ailments do when the pain is so bad. Any suggestions or help would be appreciated.
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