1. < Chronic Pain

Chronic pain & other symptoms following surgery gone wrong

Posted by moables011 @moables011, May 4, 2019

I had a surgery go wrong almost 4 years ago and since then my pain has gotten continually worse. I tried opiates but decided to get off of them because it was just a temporary fix with a lot of negative side effects. I've been to many states and countless doctors and hospitals where they have had no answers. I have also suffered from almost constant anxiety or rapid heart rates, blisters (not herpes of any kind I have been tested) , random rashes all over my body, swelling due to water or fluid build up, severely low vitamin issues, I am anemic, I have cold sweats most days and i literally pour sweat, no energy, random fevers, migraines, insomnia, issues with my stomach from diahhrea one week to constipation the next, and I get sick easily. I only take clonazapam, b12 injections, and my birth control. But it's to the point I am giving up on doctors and its impacting my mental health. Before the surgeries I worked out all the time, slept decently, had rare anxiety, and was energetic. I am just looking for any ideas, any tests I should ask my doctor to do, what this might be, literally anything. So far they just say its fibromyalgia but it's not just constant pain everywhere it's all those other symptoms plus more. It is causing me to continually lose jobs due to being sick or hurting to badly to do the work. Please someone help me figure out what I can do to get some answers and get some relief.

Interested in more discussions like this? Go to the Chronic Pain Support Group.

moables011 | @moables011 | May 17, 2019
In reply to @gingerw "@moables11 Hmm, perhaps ask him to review those two procedures with you, not simply say "everything..." + (show)
@gingerw

@moables11 Hmm, perhaps ask him to review those two procedures with you, not simply say "everything is fine". There has to be a cause of your pain and discomfort. Ask him what he would suggest to a family member with the same issues? I hope you find some answerssoon. Please let us know what he says.
Ginger

Jump to this post

I did and I got no answer. I was living in Arizona the 4 years ago. They just kept telling me they just didnt look in the bag to see if they got everything out. My PCP is fairly new I switched not long ago and she has been very helpful. she just took more blood to test last week for signs of lupus so I will hopefully know more at my next visit in a couple of weeks. If it comes back negative then she is sending me to a specialist .

REPLY
1 reply
Mentor
Ginger, Volunteer Mentor | @gingerw | May 18, 2019
In reply to @moables011 "I did and I got no answer. I was living in Arizona the 4 years ago...." + (show)
@moables011

I did and I got no answer. I was living in Arizona the 4 years ago. They just kept telling me they just didnt look in the bag to see if they got everything out. My PCP is fairly new I switched not long ago and she has been very helpful. she just took more blood to test last week for signs of lupus so I will hopefully know more at my next visit in a couple of weeks. If it comes back negative then she is sending me to a specialist .

Jump to this post

@moables011 Good morning. I hope your PCP is able to shed some light on your issues, or point you towards a specialist. A response like you got after the procedures sounds uncaring to me. Meanwhile, please take care of yourself as best you can, and please do let us know how your bloodwork turns out?
Ginger

REPLY
christina315 | @christina315 | May 18, 2019

Oh how can I relate. I want to say that Im sorry your going through this. I had mine removed 2 years ago almost 3, and have been in constant pain thats getting worse as the days go on. I have occasional spikes in my liver enzymes, but all other tests come back normal other than inflammation sed rates are usually high. I too have suffered from tachycardia since having it removed could it be from pain Im unsure. Im on a betablocker now for that. I suggest even looking into a rheumatologist to see if it could be autoimmune my ANA titer test is always sky high but then i test neg for lupus etc. All my scans come back fine mines a cyst/lesion on my liver on the rt lobe. Ive jad doctors tell me its all in my head. I had two bile leaks after i had it removed. I will be going to the Cleveland clinic on Wednesday in hopes to get a second opinion. My biliary ducts are measuring at 10mm I guess its large. I pray for you because Im on my last. Straw

REPLY
1 reply
moables011 | @moables011 | Jun 10, 2019
In reply to @christina315 "Oh how can I relate. I want to say that Im sorry your going through this...." + (show)
@christina315

Oh how can I relate. I want to say that Im sorry your going through this. I had mine removed 2 years ago almost 3, and have been in constant pain thats getting worse as the days go on. I have occasional spikes in my liver enzymes, but all other tests come back normal other than inflammation sed rates are usually high. I too have suffered from tachycardia since having it removed could it be from pain Im unsure. Im on a betablocker now for that. I suggest even looking into a rheumatologist to see if it could be autoimmune my ANA titer test is always sky high but then i test neg for lupus etc. All my scans come back fine mines a cyst/lesion on my liver on the rt lobe. Ive jad doctors tell me its all in my head. I had two bile leaks after i had it removed. I will be going to the Cleveland clinic on Wednesday in hopes to get a second opinion. My biliary ducts are measuring at 10mm I guess its large. I pray for you because Im on my last. Straw

Jump to this post

I am so sorry to hear that. Missed miscarriages are such a tragic thing to go through and so Is the fibro and all its random symptoms. Let me know how things went. I apologize I dont get on this message board often. I wish the best for you and will keep you in myprayers. Hope you are feeling betted!.

REPLY
View MoreView Less
Please sign in or register to post a reply.