Hi. My name is Tasha
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Hi Tasha. Tell us about yourself.
I was wondering if u need someone with u when u receive treatments?
@ttesch2000 Welcome to our wonderful group we try to help and listen so can you tell us a little about what brought you to connect. What kind of illness or problems do you have
no one knows what this illness is yet. i experience pain in my jaw, neck, and shouulders. it is very intense. on top of that i experience difficulties in swallowing and eating. life is not fun right now.
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I was diagnosed with Central Pain Syndrome about 3-4 months ago. I’m glad to hear that someone else has pain in chest wall, face, jaw, neck, etc. It is intense. My jaw has actually moved. I feel like I’m wasting away due to muscle loss body wide. I keep walking, meditation, socializing, etc. It’s getting harder every day. Thank you for sharing.
I also have difficulty swallowing and eating.
Has anyone seen Dr. Rubin with Mayo? He tested me for MG which I fortunately do not have. I still don't know what I have. I need help with these symptoms. My neuro at home won't help me until she knows diagnosis. Terrific!
Unfortunately, I have not been to Mayo.
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