Chronic Hives and any Cure??

Posted by marigold @marigold, Nov 22, 2011

Have you been diagnosed with chronic hives and if so what did they recommend to you for treatment?? My MD thinks it's an autoimmune situation. Please give me your comments on the above. Thanks.

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Hi Marigold - for my chronic hives i was prescribed Xolair injections every four weeks. For a number of years my hives were wonderfully controlled. For the last couple of years, I started getting outbreaks. My allergist has upped the Xolair to the highest dose one can take. When I have outbreaks, I take 5 mg of prednisone twice a week, when that doesn’t help, I take it daily. It is very low dose and I have no other affects from it. I also take Allegra during the day and Zyrtec at night.

My understanding is the uticaria (chronic hives) has no specific cause. They did seem to start when i took an antibiotic (can’t remember the name) in 2018.). I was hoping they would stop - they didn’t. The Covid injection will cause brief flare-ups that are supposed to last a couple weeks. That was my experience.

Having a pretty big outbreak now though with the Xolair and antihistamines the hives aren’t as “angry” and much more livable. Ice packs on the patches are all I have found to temporarily calm them down. Before Xolair injections I didn’t sleep a full night for months and slept with a small ice cooler with ice packs in it at my bedside

No hot baths for me! Oh, dermatologist suggested using only original Dove soap for its mildness.

REPLY
@willow5

Hi Marigold - for my chronic hives i was prescribed Xolair injections every four weeks. For a number of years my hives were wonderfully controlled. For the last couple of years, I started getting outbreaks. My allergist has upped the Xolair to the highest dose one can take. When I have outbreaks, I take 5 mg of prednisone twice a week, when that doesn’t help, I take it daily. It is very low dose and I have no other affects from it. I also take Allegra during the day and Zyrtec at night.

My understanding is the uticaria (chronic hives) has no specific cause. They did seem to start when i took an antibiotic (can’t remember the name) in 2018.). I was hoping they would stop - they didn’t. The Covid injection will cause brief flare-ups that are supposed to last a couple weeks. That was my experience.

Having a pretty big outbreak now though with the Xolair and antihistamines the hives aren’t as “angry” and much more livable. Ice packs on the patches are all I have found to temporarily calm them down. Before Xolair injections I didn’t sleep a full night for months and slept with a small ice cooler with ice packs in it at my bedside

No hot baths for me! Oh, dermatologist suggested using only original Dove soap for its mildness.

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I had a friend with same hives problem u have and she went through food allergy and food sensitivity testing which showed almonds and a few other foods were causing her hives. With me it is sunflower seeds, sunflower oil, gluten, red dye and also almonds. I also inherited Histamine Intolerance; histamine is in varying levels in foods. If a person lacks the enzyme, Diamine Oxidase, that breaks it down in the digestive tract, they get a stinging headache several hours. Another friend has a nickel allergy. Everyone is different. Good luck getting to the root cause/s of your hives.

REPLY
@irr4et

I had a friend with same hives problem u have and she went through food allergy and food sensitivity testing which showed almonds and a few other foods were causing her hives. With me it is sunflower seeds, sunflower oil, gluten, red dye and also almonds. I also inherited Histamine Intolerance; histamine is in varying levels in foods. If a person lacks the enzyme, Diamine Oxidase, that breaks it down in the digestive tract, they get a stinging headache several hours. Another friend has a nickel allergy. Everyone is different. Good luck getting to the root cause/s of your hives.

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Mine is idiopathic uticaria (no non cause). This diagnosis is made through a biopsy. It is not an unusual diagnosis for people with thyroid disease. There is no testing to be done. As they say, it is what it is. Even if I wanted to go through testing for an idiopathic (unknown cause) disease, the Xolair injections would render all tests invalid, so getting to a root cause would really be a waste of my time.

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