Chronic Abdominal Pain

Posted by lz5b00 @lz5b00, Mar 21, 2012

I have had acute abdominal pain since April 2011 and it has escalated over the months.. The pain begins early morning, remains unrelenting and escalates throughout the day. It is sharp at times and gnawing most of the time. It radiates down from my sternum and to the lower left of my abdomen. My family doctor nor GI specialists cannot find the cause. I have had CT scans, ultrasound, video capsule endoscopy, colonoscopy, blood tests, push endoscope, H pylori tests, ova stool test for parasites and MRI, to name a few. EVERY test result has been returned as “unremarkable”–no cause found. I am currently taking Paxil 25mg, Nexium and Oxycodein for the pain. Nothing has helped me determine the source of this pain. I am reaching out to this community to see is anyone has a similar experience.

@stillsearching

I had similar symptoms years ago and it turned out that my pancreatic duct was bent which did not allow the pancreatic juices to flow. It took me years to discover this. I had all of those tests too and they came back normal until I had an ERCP with a fantastic gastro wizard at UCSF (San Francisco) Keep track if the pain gets worse after eating (when the pancreas starts to work). Mine hurt more in the morning also because laying flat (sleeping) took the pressure off of the duct then ramped up the rest of the day I hope this helps. I’m on a new journey for chronic pancreatitis that has taken over my life. I’m thinking of going to Mayo clinic for some help to get some (or any) life back. I wish you a positive outcome. Don’t give up

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I get that. We have some excellent pancreatic docs at our states medical university and my GI sent me there when I was considering Mayo and Johns Hopkins. I don't know how they rank nationally as a group, but I have great confidence in them. It is about a 3 1/2 hour drive from my home and, with my wife driving, we can leave home at 5:30, get there, have an ERCP performed to place a stent or use a ballon to remove stones, etc… and be home by about 6PM. Tough for my wife as she usually has to be back at school the following morning, but it is doable. I hope you can get somewhere you are confident in for a team approach to a diagnosis and then some relief.
Gary

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@stillsearching

I had similar symptoms years ago and it turned out that my pancreatic duct was bent which did not allow the pancreatic juices to flow. It took me years to discover this. I had all of those tests too and they came back normal until I had an ERCP with a fantastic gastro wizard at UCSF (San Francisco) Keep track if the pain gets worse after eating (when the pancreas starts to work). Mine hurt more in the morning also because laying flat (sleeping) took the pressure off of the duct then ramped up the rest of the day I hope this helps. I’m on a new journey for chronic pancreatitis that has taken over my life. I’m thinking of going to Mayo clinic for some help to get some (or any) life back. I wish you a positive outcome. Don’t give up

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@gman007 Gary – just out of curiosity, which medical university did you go to? Thank you so much for your reply and all of your input. I hope today is a good day for you 🙂

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@stillsearching

I had similar symptoms years ago and it turned out that my pancreatic duct was bent which did not allow the pancreatic juices to flow. It took me years to discover this. I had all of those tests too and they came back normal until I had an ERCP with a fantastic gastro wizard at UCSF (San Francisco) Keep track if the pain gets worse after eating (when the pancreas starts to work). Mine hurt more in the morning also because laying flat (sleeping) took the pressure off of the duct then ramped up the rest of the day I hope this helps. I’m on a new journey for chronic pancreatitis that has taken over my life. I’m thinking of going to Mayo clinic for some help to get some (or any) life back. I wish you a positive outcome. Don’t give up

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The Medical University of SC. It is in Charleston, SC. In the past few years another hospital system in the upstate has begun teaching, but it will be some time before they are likely to have docs who have/are performing high volumes of pancreatic procedures and I would not go anywhere if that is not true. Don't wish to be practiced on.

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@stillsearching

I had similar symptoms years ago and it turned out that my pancreatic duct was bent which did not allow the pancreatic juices to flow. It took me years to discover this. I had all of those tests too and they came back normal until I had an ERCP with a fantastic gastro wizard at UCSF (San Francisco) Keep track if the pain gets worse after eating (when the pancreas starts to work). Mine hurt more in the morning also because laying flat (sleeping) took the pressure off of the duct then ramped up the rest of the day I hope this helps. I’m on a new journey for chronic pancreatitis that has taken over my life. I’m thinking of going to Mayo clinic for some help to get some (or any) life back. I wish you a positive outcome. Don’t give up

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@mamacita That is interesting. Do you know how this is done – blood test, etc.?

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@stillsearching

I had similar symptoms years ago and it turned out that my pancreatic duct was bent which did not allow the pancreatic juices to flow. It took me years to discover this. I had all of those tests too and they came back normal until I had an ERCP with a fantastic gastro wizard at UCSF (San Francisco) Keep track if the pain gets worse after eating (when the pancreas starts to work). Mine hurt more in the morning also because laying flat (sleeping) took the pressure off of the duct then ramped up the rest of the day I hope this helps. I’m on a new journey for chronic pancreatitis that has taken over my life. I’m thinking of going to Mayo clinic for some help to get some (or any) life back. I wish you a positive outcome. Don’t give up

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I love MUSC in Charleston! After going to Mayo GI for years and no explanation for my severe pain, my internist sent me to MUSC , along with all my records from Mayo. Turns out one of the early tests was abnormal, but not acted on. I was diagnosed with MALS and had surgery there. Very impressed with GI surgery there as well as vascular surgery.

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My husband is experiencing the same issues but his pain is on the right side and center. Every test done as you mentioned and although they've seen inflammation and an abscess they diminish after being on antibiotics. They sent him home with an oral antibiotic script and then inevitably it comes back again. He was recently hospitalized because he had c-diff due to all of the antibiotics that they have been pumping into him. He has been to the emergency room four times since May 30th and is now on his third hospitalization. If anybody has any information that can help us that would be appreciated. The hospital that we are going to is a big hospital with a great team of Physicians but they cannot provide us the answers that we need. And we can't keep living like this.

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Hi all I’m at my wits end,I’ve been getting lower left sided abdominal contraction like pains for just over 7 years.ive had numerous tests including bloods, swabs ultrasound allergy tests colonoscopy full hysterectomy and still the pains come every 28-30 days for 3-4 days where I am bed ridden ,the doctors cannot find anything .when I am in this pain my bowels open 6-8 times a day which is explosive it’s ruining my family life as well as my job.has anyone had similar please

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@ex31gayle

Hi all I’m at my wits end,I’ve been getting lower left sided abdominal contraction like pains for just over 7 years.ive had numerous tests including bloods, swabs ultrasound allergy tests colonoscopy full hysterectomy and still the pains come every 28-30 days for 3-4 days where I am bed ridden ,the doctors cannot find anything .when I am in this pain my bowels open 6-8 times a day which is explosive it’s ruining my family life as well as my job.has anyone had similar please

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Hello, @ex31gayle, and welcome to Mayo Clinic Connect. I wanted to let you know I've merged your post with this discussion with a number of members talking about abdominal pain.

I'm sorry to hear that you've had left-sided abdominal pain for over 7 years … that's a long time. Sounds like you've been very diligent in getting it checked out thus far, and it's unfortunate that nothing has been found as of yet.

Hoping that members like @mamacita @carolel @matt2134 @astaingegerdm and @sacrifice2121 will have some thoughts for you.

Have you noted anything (e.g., over-the-counter medication, sitting or standing, exercise, what you eat) that brings you relief at all, @ex31gayle?

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@lisalucier

Hello, @ex31gayle, and welcome to Mayo Clinic Connect. I wanted to let you know I've merged your post with this discussion with a number of members talking about abdominal pain.

I'm sorry to hear that you've had left-sided abdominal pain for over 7 years … that's a long time. Sounds like you've been very diligent in getting it checked out thus far, and it's unfortunate that nothing has been found as of yet.

Hoping that members like @mamacita @carolel @matt2134 @astaingegerdm and @sacrifice2121 will have some thoughts for you.

Have you noted anything (e.g., over-the-counter medication, sitting or standing, exercise, what you eat) that brings you relief at all, @ex31gayle?

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Hi Lisa thanks for the welcome yes I have tried loads of different pain relief cocodamol eases slightly but nothing as of yet gets rid of it.they tried treating me for ibs for 2 years this didn’t help atall .

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@ex31gayle

Hi Lisa thanks for the welcome yes I have tried loads of different pain relief cocodamol eases slightly but nothing as of yet gets rid of it.they tried treating me for ibs for 2 years this didn’t help atall .

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Dearest @ex31gayle, yes indeed we have much to talk about! I have lived with my precious husband, who has had your symptoms and more since we were married. I, myself, have just a few hours ago been propelled into a horrid Fibromyalgia flare. I am therefore taking five times as long to get anything done this aftetnoon. But look for a post from me to you later today. My husband also had Type 2 Diabetes and Cirrhosis of the liver.He is always exhausted. I am so glad to meet you! This is a wonderful place to "connect." Pun intended.
We are better together!

Mamacita

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And, by the way,I have also had IBS for many years. The pain was so bad I would have to ask my boss if I could leave school early. I finally went to a good specialist and was given Bentyl. I did some research on my own, and started on a gluten free diet. It worked. I know there is help for you. Let's get to the bottom of this! No one deserves tnis level of pain in their life! Keep hope alive!
Mamacita

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@mamacita

And, by the way,I have also had IBS for many years. The pain was so bad I would have to ask my boss if I could leave school early. I finally went to a good specialist and was given Bentyl. I did some research on my own, and started on a gluten free diet. It worked. I know there is help for you. Let's get to the bottom of this! No one deserves tnis level of pain in their life! Keep hope alive!
Mamacita

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Thanks very much I have an mri this Thursday after 7 years of this pain every 28days.i hope u and your husband are better soon,it’s so demoralising isn’t it.to be told there is nothing wrong time and time again it’s really hard to explain to people who are not in your situation.im lucky I have great family and friends who know my symptoms by now, take care of kids for me cook my tea etc but I want to be able to do these things and should be able to..x

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