Chose not to get breast reconstruction

Posted by detzler @detzler, Jul 11, 2016

Hi to all the women out there! I was diagnosed with breast cancer, stage 1, 11 months ago. I am 59 years old. I had a right breast mastectomy and chose to not get breast reconstruction. The prosthesis I was given is hot and uncomfortable so I am finding that I do not use it. Anyone else have this difficulty? I have recently moved and need to start all over with a new oncologist. How do I choose one?

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@detzler

We have moved from Pennsylvania to northwest Ohio. I am closest to the town of Findlay, Ohio. I am currently checking medical reviews for the oncologists located in Findlay. I will also check into all the sites all of you told me about!

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I think I am about 2 hours northwest of Cincinnati. I would be interested in any names. I will also look up the "grace project". Thanks!<br><br> <br><br> Show original message

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I've worn a breast prosthesis for almost 25 years and recently (now living in AZ) found mine to be very warm. I found a website that makes very comfortable and inexpensive prosthesis. A friend who belongs to the group knitted me two and I love them. They fit well, are washable and can be worn in a swimming pool. Here's the website: http://www.knittedknockers.org/

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First, knitted knockers are great! Second, I have a local oncologist but when I was diagnosed with a 2nd cancer Stage IV, they referred me to the closest research cancer center. They coordinate my care (sort of) and I receive chemo locally; am having major surgery at the Moffitt Cancer Center next week, which is about 1 1/2 to 2 hours away, depending on traffic. Although I certainly respect my local oncologist's wishes that we coordinate with Moffitt and I absolutely feel that, in the case of my surgery, it is the best thing I could do, the distance is difficult. I personally would not want to go through hours of chemo and have to add 4 hours of travel time to it. Just something to think about; if you can find a GOOD local Cancer Center you will eliminate a lot of stress.

Just my opinion, of course. Hang in there!

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@scwgal

I've worn a breast prosthesis for almost 25 years and recently (now living in AZ) found mine to be very warm. I found a website that makes very comfortable and inexpensive prosthesis. A friend who belongs to the group knitted me two and I love them. They fit well, are washable and can be worn in a swimming pool. Here's the website: http://www.knittedknockers.org/

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I have a question regarding the item Knitted Knockers. I was told the<br>prostheses must have some weight to it in order to hold it down and in<br>place in the mastectomy bra. I am most anxious to try the knitted items,<br>but wonder how they stay "down", where your breast line is? Thanks,.<br>Cherril<br><br>

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I was concerned about that, too, but they do stay down. Evidently the fiberfill has enough weight. You can adjust the size by adding or subtracting fill and they still stay down. I've worn mine for over a month and have been very pleased. They are cool, soft and fit into any bra you buy. No need to buy the prosthesis bras. And it is cool to the skin! And I live in Arizona!

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Thank u so much for that post, I love the bra's from the store, I just ordered the knitted one and it's nice knowing I can buy other bra's

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@yyyy

Thank u so much for that post, I love the bra's from the store, I just ordered the knitted one and it's nice knowing I can buy other bra's

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Thank you for your reply MN. I'm so happy to know they stay down and in<br>regular bras!!! Ya. Hoo!! Cherril<br><br>

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@scwgal

I was concerned about that, too, but they do stay down. Evidently the fiberfill has enough weight. You can adjust the size by adding or subtracting fill and they still stay down. I've worn mine for over a month and have been very pleased. They are cool, soft and fit into any bra you buy. No need to buy the prosthesis bras. And it is cool to the skin! And I live in Arizona!

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I am soooooo happy to have found these! Are there directions anywhere, so<br>that my friend could make them for me maybe? Cherril<br><br>

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Yes, this is the website and it has the directions to make them. The woman who made mine used a very fine and soft cotton in a pale yellow. There are many choices of sizes and colors. They are wonderful!
http://www.knittedknockers.org/

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@scwgal

Yes, this is the website and it has the directions to make them. The woman who made mine used a very fine and soft cotton in a pale yellow. There are many choices of sizes and colors. They are wonderful!
http://www.knittedknockers.org/

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Well thank you so kindly for sharing all the information you have,regarding<br>the ,"knitted Knockers". Fondly,Cherril. Take care<br><br>

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