Cholesterol granuloma of the petrous apex: anyone have/had this?

Posted by gracielynnie @gracielynnie, Jun 20, 2021

How was your recovery from surgery and quality of life now?

Interested in more discussions like this? Go to the Ear, Nose & Throat (ENT) group.

Hello @gracielynnie and welcome to Mayo Clinic Connect. I see that you are interested in connecting with other members who have had this surgery. I found some information on the National Institute of Health website regarding the surgery with some studies about the surgery outcomes. Here is the link to that information, https://pubmed.ncbi.nlm.nih.gov/12170157/.

Could you share, as you are comfortable doing so, how this problem was diagnosed? For example, what symptoms were you having and what type of specialist were you seeing when the diagnosis was made?

Is this surgery currently scheduled or are you in the process of considering it?

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Hi @gracielynnie. I was recently diagnosed with a petrous apex lesion which they think is a cholesterol granuloma. I'm guessing you had your surgery last year? I would love to connect with you and hear about your experience. I hope you are well

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@roja12

Hi @gracielynnie. I was recently diagnosed with a petrous apex lesion which they think is a cholesterol granuloma. I'm guessing you had your surgery last year? I would love to connect with you and hear about your experience. I hope you are well

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Welcome @roja12. Has surgery been recommended for you?

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@colleenyoung

Welcome @roja12. Has surgery been recommended for you?

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Yes @colleenyoung. I'll be having surgery soon. I started with a wicked headache in March, which I thought was an extra long migraine. Then about 2 1/2 weeks later double vision began. A few days later constant tinnitus and congested type feeling in my head and ears. Since the lesion is symptomatic, the neurotologist has recommended removal. He'll work together with a neurosurgeon to remove it via a craniotomy.

I would love to talk to anyone who has been on this crazy petrous apex lesion journey. Thanks!

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