Cholangiocarcinoma - Bile Duct Cancer - anyone else dealing with this?

Hi Mary,
I had successful surgery in May of 2015, before starting chemo. Unfortunately in my case, the cancer had already spread to lymph nodes. I've been doing quite well and maintaining fairly good for 27 months. I recently have started experiencing more discomfort in my abdomen and chest. Scans were done earlier this week and I will get results this afternoon. I hope the chemo will shrink your husband's tumor and that he is able to have successful surgery. Keep us posted and best of luck - keep a positive attitude and pray if you are so inclined. I believe both of those things have helped me along my way. Good luck - Kris

Hi My husband was just diagnosed with stage 4. He just started his first chemo this Monday. we don't know about surgery yet. Were you able to have surgery to remove the tumor?
Mary

Hello Kris @krishh

Thanks for your encouraging words!

Teresa

Mine is stage 4 and I have been living with it quite well for 27 months. Read my post above about my journey. I had a bad spell Jan-March this year that was the result of reaction to chemo as well as other infections, but other than that, I have basically been living with it, receiving treatment and living life. I know it won't last, but I'm doing better than what was initially suggested to me about the progression of this disease. So tell him to hang in there - I hope his progression is as slow as mine! Kris

I have no idea what to expect in the near future, all we know is it is BAD! stage 3.

I have cholangiocarcinoma. I've been dealing with it for 27 months. What kind of questions do you have? Happy to correspond with you if you wish.  ~ Kris

My name is Laura, and my children's father, & my ex of 20+ years just diagnosed a couple weeks ago with ADENOCARCINOMA, most consistent with CHOLANGIOCARCINOMA or upper GI primary. Going to Mayo-Rochester, MN on the 15th. Would like to hear anything about others experience , if any.

Thank you Colleen - I will read through the thread on Xeloda.

Kris,
You may be interested in following this discussion to hear other peoples' experiences with Xeloda. I'll continue to search for members who have had the Xeloda/Gemcitabine combination.
– Xeloda http://mayocl.in/2lSV5o9

@krishh I am pleased to hear that - yes having Mayo in your backyard is a good thing! Teresa