Chemotherapy-induced neuropathy: What helps get rid of it?

Posted by taxlady @taxlady, Jan 31, 2023

I finished chemo April of 2022
I have neuropathy in my fingers and feet. It doesn’t seem to be going away. What are treatments I can do to help get rid of it.

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@lauraboo

I tried acupuncture for the first time for my hand and feet neuropathy. My head was so itchy after and my pain got worse. Should I try again?

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I’ve been using acupuncture for 40 years, it’s an art form, so each provider can vary drastically. And some specialize in neuropathy. You have to listen to your body first. Ask if there’s someone who is good at this, and be sure to let them know your experience. I go to a college clinic. Some are good for pain and there’s one that specializes with cancer patients which is good. Ask about that and be sure to let them know if you’re getting treatment. Hope this helps.

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@jodimj

I’ve been using acupuncture for 40 years, it’s an art form, so each provider can vary drastically. And some specialize in neuropathy. You have to listen to your body first. Ask if there’s someone who is good at this, and be sure to let them know your experience. I go to a college clinic. Some are good for pain and there’s one that specializes with cancer patients which is good. Ask about that and be sure to let them know if you’re getting treatment. Hope this helps.

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I agree. The person I see has worked with people with neuropathy previously with good results

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He says he treats cancer patients. I’m going to give it one more try. Let you know. Did it help with your neuropathy?

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@auntieoakley

Please talk to your doctor about this and if that doctor doesn’t take you seriously talk to your primary care doctor or ask for a referral to a neurologist. This is a serious thing and as you are losing your “drug of choice” it is maybe more serious for you.
If you aren’t getting the rest you need during chemo, that is not really helpful either.
May I ask what you are taking chemo for and what drugs you are receiving?

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My last reply showed up out of sequence, why did you ask about the drugs and cancer type? Thanks for your input, I have contacted the Dr office, no reply so far. Might have to go elsewhere.
How much does this age people, wish I could see pictures. It’s a tough road, when my insides scream, and beginning to see extreme changes on the outside! Yikes are there moisturizers that help sooth the face and skin?
Come on with the secret recipes. Lol

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I only asked because I have more understanding of some cancers than others, and some drugs are more notorious for neuropathy than others. You are taking two that have that in their lineup.
It is disappointing that you haven’t gotten any response from the doctor. I would be discussing this the next time I see the doctor or an oncology nurse. Are you still on treatments?
I don’t know a lot about ovarian cancer but I know that your hormones are probably being impacted in a less than desirable way. So the moisturizers I choose are the ones that really sink in. I have tried a lot of expensive creams, lotions and potions, but many seem to sit on my skin and then make hot flashes worse. I find that none have slowed the accelerated aging, but a good lotion in quantity makes me feel less dried out. I am currently using inky list moisturizer for face and olive oil body butter from the body shop for body.
The hormone treatments and the loss of my ovaries (er+ breast cancer) has aged me faster than my peers, but I am grateful for the years I have been able to spend with loved ones.
May I ask how long since you were diagnosed?

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@jodimj

My last reply showed up out of sequence, why did you ask about the drugs and cancer type? Thanks for your input, I have contacted the Dr office, no reply so far. Might have to go elsewhere.
How much does this age people, wish I could see pictures. It’s a tough road, when my insides scream, and beginning to see extreme changes on the outside! Yikes are there moisturizers that help sooth the face and skin?
Come on with the secret recipes. Lol

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In addition to trying a variety of creams and lotions, I make an oil combo that I love. Use a glass bottle with eye dropper (about two ounce), fill 2/3 with a carrier oil-jojoba, Argan or any that you like. Add 10 drops of lavendar oil, 10 drops frankincense oil and 10 drops myrrh. This will last a long time and is inexpensive. The essential oils can be purchased online and don’t have to be the most expensive-just read reviews.

Best wishes, Cindy

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@jodimj

My last reply showed up out of sequence, why did you ask about the drugs and cancer type? Thanks for your input, I have contacted the Dr office, no reply so far. Might have to go elsewhere.
How much does this age people, wish I could see pictures. It’s a tough road, when my insides scream, and beginning to see extreme changes on the outside! Yikes are there moisturizers that help sooth the face and skin?
Come on with the secret recipes. Lol

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Going through radiation, it was imperative to moisturize the area 3-4 times a day because of the damage to the skin. I used Udderly Smooth cream which results amazed my radiation team. One of my infusion nurses told me her husband in construction used it on his hand which took a beating daily. It's not at all greasy so it seems to absorb better. Even better is that it's inexpensive and fragrance neutral.

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I've been on carbo/taxol for over 2 years. It's causing increasing neuropathy in my feet (which I can handle) and now on my legs, which is making more and more difficult to walk (let alone climbing even 2 steps) and keep my balance. I'm trying acupuncture and physical therapy without much success yet. Any suggestions? I don't ice my feet during chemo, I can't take it. Thank you.

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@chiara58

I've been on carbo/taxol for over 2 years. It's causing increasing neuropathy in my feet (which I can handle) and now on my legs, which is making more and more difficult to walk (let alone climbing even 2 steps) and keep my balance. I'm trying acupuncture and physical therapy without much success yet. Any suggestions? I don't ice my feet during chemo, I can't take it. Thank you.

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I had success with accupuncture for the pain but not the numbness. It did take awhile though (months?)

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@chiara58

I've been on carbo/taxol for over 2 years. It's causing increasing neuropathy in my feet (which I can handle) and now on my legs, which is making more and more difficult to walk (let alone climbing even 2 steps) and keep my balance. I'm trying acupuncture and physical therapy without much success yet. Any suggestions? I don't ice my feet during chemo, I can't take it. Thank you.

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@chiara58, I moved your question about chemotherapy and neuropathy to this helpful discussion:
- Chemotherapy-induced neuropathy: What helps get rid of it?: https://connect.mayoclinic.org/discussion/chemotherapy-induced-neuropathy/

Here are a few more discussions that you may find helpful regarding icing too:
- What are some ways to try to minimize neuropathy during chemo?
https://connect.mayoclinic.org/discussion/what-are-some-ways-to-try-to-minimize-neuropathy-during-chemo/
- Did you do icing during chemo? Did it help?
https://connect.mayoclinic.org/discussion/icing-during-chemo/

Chiara, has your oncologist suggested any changes in your chemo dosing or frequency to help manage the neuropathy? How long will you be on chemo?

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