changes in penis appearance

has anyone experienced a lot of thick fleshy penis shaft skin, a wide shaft, and the skin covering the glans, hanging down making it so difficult to stand and urinate ?

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Good grief, I have not started my treatment yet, I was born premature and with cryptorchidism so the tool never got to its full potential LOL right now he is running scare some days takes me a few minutes to find it 🙂 you take two inches off I will have to pee thru a funnel hahaha

Zzotte

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I assume everyone here talking about changes had thier prostate removed? Taking hormone blockers? Please clarify. If removed was it Robotic and nerve sparing? Has anyone seen these drastic changes after Brachy only? Trying to determine my direction with early stage confined to gland cancer. PSA 4.5, 2 of 12 with 1mm very slight 3+3=6 and area of concern having 10mm 3+4=7 with only 70% of core showing abnormal and only 10% of that is a 4 so very early. PSA PET showed no other spread. Having a hard time deciding. Any advice would be appreciated.

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@scottbeammeup

I was only on ADT for six months but lost almost two inches that I haven't gained back despite using the pump and PDE 5 inhibitors. The base of my penis is now extremely narrow while the top half has more girth than before. It's kind of disgusting and really depressing. Makes me keep the lights off when with a partner or just avoid sex altogether.

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We were never told all this I bet by our doctors, it’s very depressing at my age to look at my penis and knowing a 10 yr old has a bigger one , I’m 8 months post surgery and Radiation, pump never worked , and now having bad reaction to Trimex , I didn’t sign up for this I feel a big part of my golden years has been taken from me .

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@ucfron

I assume everyone here talking about changes had thier prostate removed? Taking hormone blockers? Please clarify. If removed was it Robotic and nerve sparing? Has anyone seen these drastic changes after Brachy only? Trying to determine my direction with early stage confined to gland cancer. PSA 4.5, 2 of 12 with 1mm very slight 3+3=6 and area of concern having 10mm 3+4=7 with only 70% of core showing abnormal and only 10% of that is a 4 so very early. PSA PET showed no other spread. Having a hard time deciding. Any advice would be appreciated.

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Depending on your age , I’ve said this before, if sex is important part of your life , I would have thrown the dice and done nothing

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@ucfron

I assume everyone here talking about changes had thier prostate removed? Taking hormone blockers? Please clarify. If removed was it Robotic and nerve sparing? Has anyone seen these drastic changes after Brachy only? Trying to determine my direction with early stage confined to gland cancer. PSA 4.5, 2 of 12 with 1mm very slight 3+3=6 and area of concern having 10mm 3+4=7 with only 70% of core showing abnormal and only 10% of that is a 4 so very early. PSA PET showed no other spread. Having a hard time deciding. Any advice would be appreciated.

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Your age is very important, as others have said. Treatment outcomes for both modalities are pretty much the same.
If you only have a very small area of G4, depending on where it is in the gland, you might be a candidate for focal therapy - HIFU, TulsaPro, etc.
Phil

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@pcrich

I had RT and ADT and my penis and testicles changed drastically. I lost a good 2 inches in length of penis with changes in color (darker and veins are more prominent) and excessive skin at head and narrower base. Testicles are now half the size they used to be.
Totally agree that it is depressing to have this negative self-body image. I see it and feel it every time I shower, get dressed or use the toilet.
Trying to stay positive about it but sometimes it works and other times not.

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has any one developed a curved penis

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@zzotte

Good grief, I have not started my treatment yet, I was born premature and with cryptorchidism so the tool never got to its full potential LOL right now he is running scare some days takes me a few minutes to find it 🙂 you take two inches off I will have to pee thru a funnel hahaha

Zzotte

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yes loosing 2 inches and having long thick shaft skin cover my glans not really seeing my urethra opening makes urinating so difficult with out pulling shaft skin back, while sitting , or risk urinating thru toilet seat opening and having it run down my long fleshy scrotum, always a detailed clean up and so frustrating

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@heavyphil

If you can get a picture of your turkey crop scrotum past Colleen, I will send you a check for $1000…🤣
Phil

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who is Colleen, and why would posting a picture be an issue, would let other see what the comparisons are, would make some feel better to realize its really not all that different

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@q95oldies

Oh yeah, no doubt on the "shrinking effect". Instant age 10 again--:)
10 months since my last Eligard shot. I wonder if it will ever come back.
Oh.....and please no pictures. LOL Personally I'd be too embarrassed.

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I think showing our changes could make all of us more comfortable with ourselves

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@heavyphil

Your age is very important, as others have said. Treatment outcomes for both modalities are pretty much the same.
If you only have a very small area of G4, depending on where it is in the gland, you might be a candidate for focal therapy - HIFU, TulsaPro, etc.
Phil

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Thanks for the input. I am still trying to find out if the majority of these changes to your penis was due to a prostatectomy? I have not been told these issues would happen with Brachy Radiation?

I am meeting with both a Surgeon and a Radiologist at Moffit Cancer Center (Center of Excellence) in Tampa this Wednesday and will specifically ask this question. I have been told that focal therapy is not recommended as a first line treatment, but again I will ask.

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