Cerebellum Atrophy

I have been diagnosed with chronic microvascular ischemia of my left frontal lobe corona radiata. My neurologist just said to manage it with my lifestyle changes that I have made to try to manage my extensive CAD (CAC over 1000). I've already had a TIA. I'm only 64 and my only symptoms seem to be some balance issues and some possible cognitive/memory decline. Since this disease is basically causing loss of brain matter due to blood flow interruption I wondered if it is relevant to this thread. There is no cure. Anyone else with this problem? I feel like I'm waiting to see if my heart or my brain go first!

Hi @alexgoldman2 I believe physical exercise will help in the long run so continue with what you can. As for the headaches hang in there. They will occur less frequently. I now get my headaches 1-2 times per month. In the beginning I tried Tylenol. It did nothing for me. I found a bag of ice on my head to be more helpful. I used that throughout the night to get sleep. Recently, I tried a tea recommended by another member to decrease the intensity or completely eliminate my headaches. Keep on learning answers for yourself and remember to always keep a positive attitude because you are a survivor. It is a tougher new way of life for us. We need to make the most of what we can do. Toni

@pec2884 I am working in some inherited diseases which are making a mess of my life. One thing I have clearly learned about my cerebral white matter disappearance: Have a legitimate medical genetic analyzing company Nebular do a complete 100% analysis of your genetic structure. If you can find no gene that might cause your problems, it may not be inherited. With mine, I have learned that I have both Fukutin Muscular Dystrophy (FKTN; OMIM:606596) and Gelsolin(GSN; OMIM:105120). The general rule is that, if you don't have the gene or some genetic evidence, look somewhere else. But always be aware that almost ANY gen CAN mutate, but not necessarily will. I went through a lot of stuff which could have caused mine to mutate. Radon, Round-Up, other chemicals, cold, hot, sunshine, my own cooking (I suppose) etc. My cerebellum issues were seen years ago, but the diagnosis only started with genome analysis and good brain imaging..

No, the condition seems to have its own time line and I am doing my best to flow with it. Dizziness, and headaches a night are newest on the hit parade.

oldsusanne55, I looked them up, but they are not right for me. I use a cane in the house and a wheeled device when I go out.

Transport chair is a wheel chair with 4 little wheels . Has to be pushed by someone. Quad cane has 4 little feet on a little platform . Can stand up by itself

I don't know what a quad cane is or a transport chair I use a wheeled walker. What are those devices? Dizziness is the newest visiter .

Hi @alexgoldman2 I agree walks are a challenge with imbalance. I have the same issues and use a quad cane mainly for outdoors around the house. It is a tremendous help with walking in the driveway and lawn. I am looking forward to setting up a small garden this year. Have you thought about a transport chair? I have purchased one on amazon. It is different from a wheel chair. I use it for long distances with my husband. He pushes the chair but we can go longer distances like to fairs or trails together. It is easier for him because the chair presents a less chance of me falling. He likes it. We haven’t used it at all during the pandemic. Last year the air show was cancelled as a result but we plan to use it more for future events. Wish you well. Remember where there is a will, there is a way. Toni

Dizziiness is Problem as is mobility; I miss going for walks, now walking from room to room is a victory, with a cane, of course. Alex

Hi @oldsuzanne55 The Keto diet is not an easy diet to follow especially for me because I do not like fatty foods or meats. My husband and I tried it for several months. My husband loved it. Eating almond flour, cream cheese, and sour cream was not easy but I did it. The desserts and bread did not have the same taste as I expected. For one thing, after getting off the diet, I learned to alter Keto recipes to make my own low carb bread with the regular flour. I use the same dough to make pizza which we enjoy every week. We never buy any bread. I make it in different forms like hamburger or hot dog rolls for sandwiches.
Glad your husband does not consume any alcohol. I stopped that too and caffeine so no regular coffee for me. I drink decaffeinated coffee and tea.
Has he had a fasting blood glucose test? I would advise seeing his regular doctor to see if a low carb diet is right for him. Toni