Cerebellum Atrophy

I am in severe pain since falling about a month ago, then falling two weeks ago. I stumble, catching myself by grabbing onto walls, furniture, and people. Some days are better than others. Seems like I am deteriorating faster than previously. I am frustrated with this situation and feel like crying all the time. My life revolves around trying to stop the pain.

I haven't heard from you in awhile. How are you doing? We are now at our home in Homer, Alaska. We did travel trough Canada and stopped in Swift Current, Saskatchewan. Isn't that where your daughter lives? Howard is now walking with a walker with wheels. He does fall quite a bit, but, has not broken any bones. Where were you diagnosed at? We won't be returning to Michigan as we have sold our home there. This way we are closer to our daughter who can help out somewhat ( she has young children and home schools them. Just want to keep in touch with you as you are the only one I have found who has this dianosis.
Noreen (wife of Howard James)

I haven't seen any responses but I saw a mother trying, like me, to make sense of this diagnoses. I know there is no cure or treatment and little that can be done to slow down the progression. I am going to a physical therapist to help with balance and to monitor my deterioration through assessments so I get the correct devices for mobility. I have the form that is like Parkinson, with tremors.

My son is 5 and diagnosed with cerebellar atrophy, what do i need to know about this ? He is 5 and his cerebellum is normal for a person the age of 65 years old.

@ldrake101, This makes sense! I guess I misunderstood your mention about the cane.
Rosemary

I don't know what questions I have at this time. I am trying to make sense of it and accept it on some level. I was doing some research on my diagnosis when I came across this chat, decided it might help me.

Rosemary,
I don't have a cane at this point. I am not sure it will prevent falls but could be a greater hazard in a fall.

Hello @ldrake101,

I can only imagine your worries with such a diagnosis, but I'm so glad you've joined the Connect community.
@howardjames, @pec2884 @dmkmom04, @menville, @lindal, @tonyc @tonyc55, @godisnumber1, would you share your experience and insights with @ldrake101?

While we wait for members to join in, you might also wish to to view this Mayo Clinic news article about autoimmune cerebellar ataxia: http://mayocl.in/2mX9Off

@ldrake101, what questions do you have?

@ldrake101, Welcome to Connect. While I am not informed about your condition, I can identify with your fear of a new diagnosis and questions about the future. (Mine was transplant related) You have come to the right place to seek some answers from the experiences of others who share your diagnosis.
While you are waiting for their responses, I want to encourage you to use that cane. You do not need to fall and cause yourself any avoidable injuries. I had to use a walker and a wheel chair, and although a blow to my ego - it did protect me from falling and tripping.
Rosemary

I was recently diagnosed with cerebellum atrophy with no known cause. I am 49 yrs old. I refuse to use a cane at this point but I fall frequently, without warning. I don't know what my prognosis is and I am not sure I want to know. I don't see activity since January, so I am hoping I get a response.