Cerebellar Stroke - experience/treatment/recovery

I suffered a Cerebellar Stroke in Dec 2015 in my 40s and am interested in connecting with other cerebellar stroke survivors to share our experiences, testing/therapy options, struggles on the path to recovery.

Interested in more discussions like this? Go to the Stroke & Cerebrovascular Diseases group.

@hopeful33250

Hello @thinkitseeitdoit @maryar @mikejack

I want to thank you all for sharing your experiences about stroke and recovery. I know that this will be helpful to @kleo4 @gmike and others who come to this discussion group to understand that they are having similar experiences and feelings of others who have walked down this road of stroke recovery.

I would appreciate any of you sharing what therapy, advice, etc. that you have received that was the most helpful to you in your recovery. Was PT, OT, cognitive therapy involved in your post-stroke therapy?

I look forward to hearing from you again and helping me better understand the recovery process.

Teresa

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I have recently written some of our experiences with my mother in the https://connect.mayoclinic.org/discussion/cerebral-amyloid-angiopathy/ section. It seems a lot of issues are similar.
I give you so much credit for getting help with depression. I feel it has been a vital part of my mom's recovery. We had to add an additional medication (for it) last fall. A month or so ago she started refusing some of her meds, and it turned out to not be a good thing (messed up cognitive thinking even more and she started imagining things again). A couple weeks ago we had all her meds evaluated and will have a re-check the end of the month. It is so important to stay on top of what's working and what is not. Keep taking good (and smart) care of yourself!

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@hopeful33250

Hello @thinkitseeitdoit @maryar @mikejack

I want to thank you all for sharing your experiences about stroke and recovery. I know that this will be helpful to @kleo4 @gmike and others who come to this discussion group to understand that they are having similar experiences and feelings of others who have walked down this road of stroke recovery.

I would appreciate any of you sharing what therapy, advice, etc. that you have received that was the most helpful to you in your recovery. Was PT, OT, cognitive therapy involved in your post-stroke therapy?

I look forward to hearing from you again and helping me better understand the recovery process.

Teresa

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My heart goes out to you, its a hugh learning cruve

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@hopeful33250

Hello @thinkitseeitdoit @maryar @mikejack

I want to thank you all for sharing your experiences about stroke and recovery. I know that this will be helpful to @kleo4 @gmike and others who come to this discussion group to understand that they are having similar experiences and feelings of others who have walked down this road of stroke recovery.

I would appreciate any of you sharing what therapy, advice, etc. that you have received that was the most helpful to you in your recovery. Was PT, OT, cognitive therapy involved in your post-stroke therapy?

I look forward to hearing from you again and helping me better understand the recovery process.

Teresa

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Ugh, depression stinks! I think that most therapists say after a stroke it is harder to hide your feelings, they are just all out there! I have found this to be true of my world now. I do take an antidepressant, the first one took was a disaster, but the second one is better. Not great, but better.

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@hopeful33250

Hello @kleo4 and welcome to Mayo Connect

I can only imagine what a frightening experience this was for you and your partner. You mentioned that you are scared that this will never go away. What has your partner's doctor said regarding the recovery progress for this type of brain bleed? A lot of people have had good results with physical and cognitive therapy after a stroke or brain bleed. When you see the neurosurgeon this week, these are good questions to bring up.

Here is a link to a Mayo website that discusses stroke rehab, https://www.mayoclinic.org/diseases-conditions/stroke/in-depth/stroke-rehabilitation/art-20045172. Here are some other Mayo Connect discussions about strokes and brain bleeds that you might find helpful,
https://connect.mayoclinic.org/discussion/brain-bleed/ and https://connect.mayoclinic.org/discussion/cerebellar-stroke-experiencetreatmentrecovery/

I hope that you and your partner are able to put your fears aside for just a time until you have the opportunity to talk with the doctor.

I would love to hear from you again. Will you post again?

Teresa

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@kleo4 Hello Karen,

I have been thinking about you and your partner. As I noticed from your last post, he had a doctor's appointment on the 11th. I am hoping that he got some information that has put your mind at ease and has offered him a good strategy for recovery.

When you have time, I would love to hear from you again.

Teresa

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Hello All:

Many of our Members have posted about post-stroke recovery and some of the discouragement that can happen as you adjust to your "new normal." In the most recent issue of Brain & Life (free subscriptions are available to anyone interested in receiving this publication by regular mail or email) there was an article, "10 Ways to Manage Post-Stroke Depression." Like me, I believe you will find this article very informative. Here is the link, https://www.brainandlife.org/the-magazine/online-exclusives/the-neurologist-is-in-10-ways-to-manage-post-stroke-depression/

I found the points of staying active, physically and socially, to be especially interesting. There are many stroke support groups and I was wondering how many of our Members have been involved in a group and would like to share what goes on in their group and how it has helped them.

I look forward to hearing your comments.

Teresa

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Sounds great you have recovered hello im a staff nurse i want to get back to work asap but the thing is am still dizzy after 2.5 years my world was turned upside down by a stroke which ripped through me in May 2015 I have had physiotherapy occupational health which helped me I am not walking unaided I use a wheelchair which I do not like as some people especially children stare and make me feel uneasy

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Hello @ausian1967 and welcome to Mayo Connect. I see that you just joined our online community and that this is your first post.

I am so sorry to hear of your stroke in 2015. It sounds as if you are grateful for the progress you have made, but you are discouraged by the leftover effects of your stroke. This is completely understandable. Just like you, most of us would prefer to walk unaided without needing a wheelchair.

Could you share with us, as you feel comfortable doing so, what has helped you the most in your post-stroke recovery? At Connect we all learn from each other's experiences and I sense that there is a lot we can learn from you!

Once again, welcome to Mayo Connect, I look forward to hearing from you again.

Teresa

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hello have you fully recovers I had a cerabellstroke 2.5 years ago I just have constant dizzy spells and can walk yet it's so frustrating I work as a nurse and the ward manager gave me a3 year career brake which is most helpful

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@maryar

Did you ever get answers here? I also would like to connect to someone that has “been there” as I has so many questions and find so few answers.

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mine does my eyes jump and I cannot walk yet due to my head being dizzy for 2 half years

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@elizabethmm

My Stroke was about two years ago, I had no or little symptoms at the time, except that I suddenly was very dizzy and my Eyes didn’t go where I wanted them to go … today was an especially bad day, I had to leave a card store where I looked for cards, I got nauseous and dizzy, barely made it out of the store … anyone else with those Issues .?

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hello hope you are getting better did your dizziness lapse and did it resolve

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