Cerebellar stroke experience, treatment, recovery - want to dialogue

I find it affirming of my experiences that people explain much the same going on with them. It is isolating to feel so Not Normal, but when others who have felt the same express themselves I think, "yes! That is how it is! Some else knows how it is!" Thank you people. Keep posting.

My Neurologist told me that my head and shoulders tighten because of Nystagmus in my eye - my head and shoulders are trying to hold my world in focus. I get a humming sound in my ears (sounds like the recycled air noise on an airplace) before the headache begins.

I have to shorten the amount of time I go out shopping and I used to love heading to outlet malls to shop-for-sport for a day. No longer!

it has improved from the early days after my stroke but I can maybe shop for a couple of hours at the mall but not during crazy busy times.

I find shopping overwhelming as well. My Neurologist told me it is called brain flooding - too much to process at one time. It makes me feel like I've run a marathan - I get exhausted and I can't keep my eyes open - need to head home for a nap.

Have you tried Binocular Vision therapy for the Nystagmus with your eyes? Are you working?

I am like that after almost three years. I had two brain bleeds after a TBI during a car accident. Shopping brings it on, especially a store where one must scan items visually or be moving while looking around. First, my head feels like it is twice its size, tinnitus starts, my eyes feel blurry and I begin to feel completely overwhelmed with my shoulders tightening up. Often feeling sick to my stomach. I have a complication: my neck was also broken and a bony bridge never healed. Each day some part of it is given over to dizziness, although after this long the periods of not being dizzy are increasing somewhat.

My Stroke was about two years ago, I had no or little symptoms at the time, except that I suddenly was very dizzy and my Eyes didn’t go where I wanted them to go ... today was an especially bad day, I had to leave a card store where I looked for cards, I got nauseous and dizzy, barely made it out of the store ... anyone else with those Issues .?

Are you having any other stroke symptoms? Why is your balance an issue? When was your stroke?

Have you tried Binocular Vision Therapy for your vision Nystagmus?

Did you also have a cerebellar stroke? I have cognitive issues only - no physical struggles.

I not only have been there I AM there, I have zero Balance and my Eyes jump wherever they want to ...