← Return to Cerebellar Stroke - experience/treatment/recovery

Discussion
Comment receiving replies
@strokesurvivordynamo

My Neurologist told me that my head and shoulders tighten because of Nystagmus in my eye – my head and shoulders are trying to hold my world in focus. I get a humming sound in my ears (sounds like the recycled air noise on an airplace) before the headache begins.

I have to shorten the amount of time I go out shopping and I used to love heading to outlet malls to shop-for-sport for a day. No longer!

it has improved from the early days after my stroke but I can maybe shop for a couple of hours at the mall but not during crazy busy times.

Jump to this post


Replies to "My Neurologist told me that my head and shoulders tighten because of Nystagmus in my eye..."

I suffered with headaches the whole 1 st after my stroke. Fine when eyes were closed and sleeping, but at soon as I opened them in the am, my head would start pounding to some degree, not terrible, but very annoying and bother some. I was driving one day and felt like I had another event coming on, felt dizzy, could not see clearly and the scariest part want when it seemed to be getting dark outside in early afternoon, 2 pm or so.
Kept driving till I got to a clinic I knew of (which turned out to be 10 minutes farther that I thought) and got ck'd out. Again as many have said, Dr's really couldn't tell much because the symptoms subsided by the time I got there. Did EKG and etc. In the end of the visit the doctor suggested I try Propranonal for the headaches (works for blood pressure for some, if needed also). I hate taking pills, but after a week more of headaches, I gave in and tried it. What a difference it made for me!! Within 2 days, most of the headaches subsided, still feel light headed a fair amount, but headaches are much better.
Doctors don't know why Propranonal works for headaches, just know that it helps. Also will calm nerves just a tiny bite.
Hope this helps. Kept the faith!!