Cerebellar stroke experience, treatment, recovery - want to dialogue

Right side here too. Left side affected. Little control over limbs, but still had strength. Kinda strange. But the headaches, they have done nothing but get worse. Do most people with this type stroke end up with these headaches? What do you use for painrelief? Aside from the injection treatment you are receiving, if you dont mind me asking?

Hi how are you? My caverneus is in brain stem. I had a hemorrhage on 9/30/18

My headaches are constant but when i lean or lay on any surface hard ir soft it hurts more. My stroke occurred on my right cerebellum.

Insula, when I came home, balance was gone, I still had terrible vertigo, still vomitted, and had to work very hard to get to the point where I could use the walker. But, I was 57, in good health, and progress was made quickly. Well, took a couple months, but progress was made every day. Once he gets better with walker, he will be inspired to keep working harder until he can walk without it. You are, as of now, at the most overwhelming point. That will pass to just a memory as he begins therapy and makes progress. God bless!

Thank you for your reply, Supra. Are your headaches constant, or only when head is against something? Mine are all day always, but become unbearable with pressure applied, as with pillow, wall. Don't mean to pin you down, just trying to understand my own head, lol. Is this headache typical for this type stroke?

I had my stroke back in December 2015 and I've always had those headaches. whenever I lay on a pillow or rest my head on the wall it always hurts. my neurologist just put me on topamax and started me on SPG blocks. I did one and have two more. It's only been a week so I dont expect results this soon.

I am sorry for your husband. Cerebellum is where the stoke occurred which is also called the little brain at the lower back of your head and ischemic means the stroke was cause by a blood clot . I am almost two years since my cerebellum stroke(it was a clot too) . I still have mild balance issues. It takes time, some rehab, Physio too to help. I have spent a lot of time in the pool to strengthen the left side. I can’t believe I am still getting better after this time but it is small amounts. Don’t be discouraged- it takes time.

When they admitted my husband to the hospital they diagnosed him with Ischemic stroke, but when they discharged him the diagnosis was Cerebellar Stroke, acute. He has Stage 3 chronic kidney disease, is diabetic and high blood pressure. He came home from the hospital yesterday afternoon and is still suffering from very bad balance issues. Even with the walker.

Just to give further detail....the head aches are terrible. Can barely stand the feel of a soft pillow. Makes me fear another stroke on my horizon. Say it isn't so. 😉

Cerebellar stroke, 2017. Still not comfortable in my own skin. Still feel like I slog daily through a mud bog. I had a "large" right side stroke. The new me is quite unknowable....to me. I feel my world is alien and my place in it imprecise. Lost my left side function. Did therapy for a year. Very aggressive, which was my nature. If I could, I would. And I did. Within 3 months I was walking miles. Husband cut a path around the farm that was my walking path. Had an unexpected cling on. My left side developed a type of palsy, making buttoning, cutting hair, and my own nails nearly impossible. But...I digress, lol.

Wanted to know if anyone else has had a palsy develope AFTER, (for me, a couple months) the big event. Would love to write some happy clappy BS, but cant. Would have to lie. Won't do that. Also.....headaches, scary cerebellar head aches. Anyone?