Cerebellar stroke experience, treatment, recovery - want to dialogue

@barbarajean100 sorry to hear that you experienced another stroke. Was it also in the cerebellum?

I posted a couple of months ago because my husband suffered a PICA stroke. We are very lucky that it did not affect him much physically. The mental effects are there- and he's going to be seeing a neuropsychologist.

I'd like to ask if any of you made lifestyle changes after your stroke, and if you noticed the differences in your well-being. We want very much to avoid a reoccurence here!

Thank you from the bottom of my heart for sharing this. It is so "validating" to know that someone else experiences the similar symptoms. Your descriptions seems a whole lot like my experience. I was just reluctant to reach out because alot of persons have it so much worse than mine. I feel like I would be complaining because there are so many much worse off. My experience has been more in my "thinking" and "cognitive" than the outside obvious injury. I do have a little bit of trouble with my right three fingers on my right hand and my right arm, shoulder, hip and foot, but for the most part, I am ambulatory. I am not going to list everything but I would say that most I deal with balance in a car when riding, I drive to the right because I think my perception is off. I get overstimulated so easy even in menial tasks. If too many things are going on, like tv and telephone call and someone talking, I can't have good perception because my mind is too busy. That's when my speech suffers the most. I can be doing fine in the morning when I wake, and a phone call come in and I answer and immediately my speech will be dysartric. My neurologist says its called "flooding" and I just have no filter/buffer. Forget the grocery store. Too many people. I will stop at that because I feel like I am complaining again. I promise I'm not, it's just things I wonder if someone else deals with. I apologize.

I want to thank you for your positive words and encouragement. That means so much. I appreciate it. I would like to say that I am a very positive person and my "faith" has helped me in so many ways. AND the fact that I just try to "make light" of myself when I do something that seems a little crazy. I try to make fun of myself. The Word says "laughter" is good like a medicine so I focus on laughter. I love to laugh.

Many thanks.
Barbara

My first stroke....are you wanting another???
I had my only stroke in November ‘18. Dragged my foot to the door after waking from an incredibly bad nightmare. Left arm tight against my chest, drooling.
Some one was knocking on my door and wouldn’t stop. The bug man prevented me from being full on paralyzed. God bless him.
No one would be able to tell I had a stroke today.
I had another mini stroke in March.
I miss my brain cells, the ones that told me where the letters on a keyboard or how to access my memory banks.
I also have multiple sclerosis so these challenges could be from that also.
All in all, I CHOOSE TO LEAD A TRIUMPHANT LIFE.
ATTITUDE IS EVERYTHING.
BRIGHT WINGS

Hi Barbara. I had a the same type of stroke a couple of years ago. I experience similar challenges to this day with my speech when things get mentally tough at work. It never seems to happen outside of work. I don't think my speech challenges get as bad as yours though by the sounds of your post. My job in general requires a lot of problem solving and by Thursday, I am a bit fried and find I have trouble pronouncing certain words. I can get most words out, just a few syllables I struggle with mostly. The more I think about getting the words out when I talk, the worse it seems to get. I don't seem to have these challenges when I am away from the work environment.

BTW, don't feel like your complaining, your in the right place to explain what you are feeling and ask questions!

I am 49 and at 47 I had my first cerebellar stroke. I am interested if anyone has similar issues. I have lots of issues, and will share if you want, but I have always had speech difficulties. The weird issue with me is that first thing in the morning or after a quick nap I have no speech issues, and sound like normal me, but as soon as I start to do something or focus or get anxious in any way or overwhelmed or multitask or focus on something, my speech will go "off" and I become so bad I can't say a word or my tongue and jaws will not make the words and I sound stupid. They are calling it dysarthric speech. It just doesn't make sense. I am so blessed so I hate to complain but I have wanted to reach out for a long time and just didn't. Can anyone help?

Blessings
Barbara

My cardiologist is the best. Always approached the process as eliminating the things that didn't cause the stroke, never approached it from the point of trying to find the cause. Although I was anxious not knowing the definitive cause, I know the 100 things that didn't cause it, which made me realize I am a healthy guy otherwise. It took a while, but I got to the point where I would leave each appointment excited that something else was ruled out.

The whole stroke thing made life pretty difficult for a quite a while. I had to re-learn a lot of things that were basic and it took more than a year to get to the point where I felt like I made good progress. Still making progress today, if I find something difficult, I focus on it until it becomes not as difficult any more. I am (re) building my porch, realized yesterday that I climb down the ladder starting with my right foot each time then lowering my left foot to the same stair. I started to work yesterday on right foot on a stair, left foot on the stair below that one, etc. I expect I won't have to think about that in another couple of weeks, will become 2nd nature.

Couple things that I started to realize a few months back. Although the stroke brought on a lot of challenges and a new norm, in my case, it is not terminal, just inconvenient, took me a lot of work to get some normalcy back. The other thing, I had someone that went through something a lot more serious and stressful say to me (a line from the Shawshank Redemption movie), "You can get busy living or you can get busy dying." That kind of hit home and I decided to get busy living. You never know what tomorrow holds, enjoy the day. I understand strokes affect each person differently, some have more challenges than I, that is my story though.

Hugs and Prayers for you. It sounds like you have your doctors help which would take away your stress. My doctor's are creating my stress -or maybe it is the nurses. Things seem different in office verses over phone.

I am 49 and at 47 I had my first cerebellar stroke. I am interested if anyone has similar issues. I have lots of issues, and will share if you want, but I have always had speech difficulties. The weird issue with me is that first thing in the morning or after a quick nap I have no speech issues, and sound like normal me, but as soon as I start to do something or focus or get anxious in any way or overwhelmed or multitask or focus on something, my speech will go "off" and I become so bad I can't say a word or my tongue and jaws will not make the words and I sound stupid. They are calling it dysarthric speech. It just doesn't make sense. I am so blessed so I hate to complain but I have wanted to reach out for a long time and just didn't. Can anyone help?

Blessings
Barbara