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Central Neurocytoma (recurring) diagnosed today with tumors #5 & 6

Posted by Amy @mamab1223, Aug 1, 2016

Anyone to help with recurring Central Neurocytoma, my sister was just diagnosed with 2 more this makes the 5th n 6th CN in 15 years.

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Lisa Lucier, Moderator | @lisalucier | Mar 18, 2020
In reply to @mamab1223 "Thank you. Right now we are just waiting to find someone to figure thingsout. Went yesterday..." + (show)
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Thank you. Right now we are just waiting to find someone to figure things<br>out. Went yesterday to oncologist who would of done the gamma knife and she<br>had no records to compare. Very surprised how unprepared. The neurologist<br>is saying they are lesions n the neurosurgeon us saying they are brain<br>tumors. The oncologist says she doesn't know and now we have to wait till<br>next Monday for tumor board to look at it. What a joke. Wasting precious<br>days if this is tumors. Hopefully mayo clinic will get cd and get us<br>answers ASAP.<br><br>

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Hi, @mamab1223 - wondering how things are going with your sister?

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hawknroll | @hawknroll | Apr 26 9:03am

I have on too do not know what to do.

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Colleen Young, Connect Director | @colleenyoung | Apr 27 8:09pm
In reply to @hawknroll "I have on too do not know what to do." + (show)
Profile picture for hawknroll @hawknroll

I have on too do not know what to do.

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@hawknroll, I'm sorry to hear that you've been diagnosed with a central neurocytoma. Is this a recent diagnosis? Do you have a treatment plan?

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