Celiac Disease (refractory type)

Posted by Reny @reny, Sat, Jul 13 4:08pm

I do not see any discussion about this disease and I suffer not only with this but with IBS that goes from D to C quite regularly. I have a strong gluten free diet, but suffer daily with symptoms that range from simple headache to all over exhaustion and muscle fatigue. I need a support group, either online or in the Orlando area. I really do. I need a positive support group. I also have hypothyroid, anemia, fibromyalgia, and chronic migraine. No, I am not a hypochondriac. Most of these are military service connected. I served 18 years from 1983 to 2001 and was deployed several times. Persian Gulf one veteran. Of course Celiac is genetic and I was diagnosed with that in 2008; however, the rest is SC and I am not able to work right now. I am getting a higher lever degree so I can work again (doctorate). I do miss working; however, I never know when my symptoms will keep me near a bathroom or in bed, so I need a job that is flexible and I can make my own hours (thus the doctorate).

Please let me know if anyone wants to chat.
Reny

thank you I just read the link, so when I had my colonoscopy I they did a biopsy for another reason so they would have found the celiac disease then you think?

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@barb2025

thank you I just read the link, so when I had my colonoscopy I they did a biopsy for another reason so they would have found the celiac disease then you think?

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@barb2025 — I'm not sure I can answer that but I'm pretty sure if you asked your doctor they would give you the specifics.

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Celiac Sprue affects the small bowel. Biopsies for that are done in the first part of the small intestine called the duodenum. Of course get clarity on this. I would think they were looking for different types of colitis in the colon.

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THANK YOU Lighthouseceliac

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@johnbishop

@barb2025 — I'm not sure I can answer that but I'm pretty sure if you asked your doctor they would give you the specifics.

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Thanks John

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