I do not see any discussion about this disease and I suffer not only with this but with IBS that goes from D to C quite regularly. I have a strong gluten free diet, but suffer daily with symptoms that range from simple headache to all over exhaustion and muscle fatigue. I need a support group, either online or in the Orlando area. I really do. I need a positive support group. I also have hypothyroid, anemia, fibromyalgia, and chronic migraine. No, I am not a hypochondriac. Most of these are military service connected. I served 18 years from 1983 to 2001 and was deployed several times. Persian Gulf one veteran. Of course Celiac is genetic and I was diagnosed with that in 2008; however, the rest is SC and I am not able to work right now. I am getting a higher lever degree so I can work again (doctorate). I do miss working; however, I never know when my symptoms will keep me near a bathroom or in bed, so I need a job that is flexible and I can make my own hours (thus the doctorate).
Please let me know if anyone wants to chat.