Celiac accidentally glutened

Posted by eyesing @sunflower012, Oct 14, 2019

Does anyone know how long someone can eat gluten before becoming anemic? I think I was accidentally glutened for about 5 days, and although that was about 2 weeks ago, my fatigue is still through the roof. Other than the standard bowel issues, fatigue is my biggest indicator that I've been glutened. As a cancer survivor, I've experienced anemia before, so I've been taking a 65mg iron supplement for years. I don't know whether or not to ask my doc for iron level labwork.

@sunflower012 – Welcome to Connect! I don’t have celiac myself but I have 2 daughters that do. I know they suffer for days even with one exposure. To my knowledge it is the immune inflammation from the exposure that causes the fatigue. However, since you have dealt with anemia before it probably is a good idea to check with your doctor.

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Hi @sunflower012,

I’m thrilled to see you return to Connect! It’s been quite a while – welcome back!

As a start, I’d sincerely encourage you to view the "Gastroenterology & GI Surgery Page" on Connect, https://connect.mayoclinic.org/page/gastroenterology-and-gi-surgery/
where you can browse through newsfeed posts from Mayo Clinic experts, learn about clinical trials and up-to-date research, and find some great resources.

For instance, these videos might interest you:
– Tips to Avoid Cross-Contamination in Gluten-Free Foods https://connect.mayoclinic.org/page/gastroenterology-and-gi-surgery/newsfeed-post/tips-to-avoid-cross-contamination-in-gluten-free-foods/
– Mayo Clinic Dietitian Weighs in on Diet and the Celiac Patient https://connect.mayoclinic.org/page/gastroenterology-and-gi-surgery/newsfeed-post/mayo-clinic-dietitian-weighs-in-on-diet-and-the-celiac-patient-1/
– What to do When A Gluten Free Diet Doesn't Work https://connect.mayoclinic.org/page/gastroenterology-and-gi-surgery/newsfeed-post/what-to-do-when-a-gluten-free-diet-doesnt-work-1/

I’d like to invite a few members who’ve shared their experiences with celiac disease to join this discussion. Please meet @lisa53 @clarkie @oakbourne @jenniferhunter @bentley33 @lighthouseceliac @reny @sue225 @jjren @airey2 @guthealth @emyliander @peabody88
You can also read their posts in these discussions:
https://connect.mayoclinic.org/discussion/best-diet-for-recovery-aside-from-being-gluten-free
https://connect.mayoclinic.org/discussion/celiac-disease-under-immune-disorders-refractory-type

@sunflower012, are you able to share more details about the accidental ingestion of gluten? Do you think there might have been cross-contamination?

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@sunflower012 I can't eat gluten and have been gluten free for 19 years, and recently I did accidentaly eat about 3 bites of mac and cheese made with a wheat based pasta. I could feel some digestive discomfort and feel it move through my digestive tract, but other than that, I was fine. I have a lot of other food allergies too, and that happened because of a leaky gut from eating gluten before I figured these things out. The other health issues that you have may be more at work with the fatigue you are experiencing, or it is the combination of all of it together. I used to have a much bigger response to gluten exposure years ago with bloating and what was like an intestinal flu. I think that my system has healed because of avoidance, so one mistake wasn't such a big deal to my body. That was welcome news. There are also enzymes that are sold at pharmacies that digest gluten if you have an accidental exposure. I certainly would talk to your doctor and check iron levels. Your ability to absorb nutrients in the gut will affect that too, and a blood test would confirm if that is successful.

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@jenniferhunter

@sunflower012 I can't eat gluten and have been gluten free for 19 years, and recently I did accidentaly eat about 3 bites of mac and cheese made with a wheat based pasta. I could feel some digestive discomfort and feel it move through my digestive tract, but other than that, I was fine. I have a lot of other food allergies too, and that happened because of a leaky gut from eating gluten before I figured these things out. The other health issues that you have may be more at work with the fatigue you are experiencing, or it is the combination of all of it together. I used to have a much bigger response to gluten exposure years ago with bloating and what was like an intestinal flu. I think that my system has healed because of avoidance, so one mistake wasn't such a big deal to my body. That was welcome news. There are also enzymes that are sold at pharmacies that digest gluten if you have an accidental exposure. I certainly would talk to your doctor and check iron levels. Your ability to absorb nutrients in the gut will affect that too, and a blood test would confirm if that is successful.

Jump to this post

I have been gluten free for 20+ yrs and have other autoimmune issues. A lot of good advice has already been given, I would just like to mention a medication that I have been on for almost as long, to help with extreme tiredness, it is Modafinil which is primarily for people with Narcolepsy but can also be used for Daytime Sleepiness. This diagnosis was given after a sleep study. I was falling asleep at work so this saved my Career in health care and also my driving ability. It is not a cheap medication and sometimes requires additional information from the doctor to the insurance people if they deny it the first time.
For me it was a life saver.

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