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Cavities on CT scan but no MAC in sputum cultures

Posted by jago @jago, 2 days ago

Does anyone have a cavity (I have 2 small ones and 1 new one) and never tested positive for MAC? I've tested negative for fungus as well, only Haemophilous showed up earlier this year. I cough a lot, much mucus, even with the daily clearance of two 7% sessions & ACTs. My doctors at NJH have no answers and suggest a bronchoscopy. Since my cough and SOB are worsening, and with no other signs of an exasperation, I'm stumped.

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maxraether | @maxraether | 16 hours ago
In reply to @helen1000 "@maxraether you may have a better chance to shrink the cavities as they are very small...." + (show)
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@maxraether you may have a better chance to shrink the cavities as they are very small. Mine is bigger, once larger than 2cm.

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Did you ever have to have a biopsy on any of them?

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leslie51 | @leslie51 | 2 hours ago
In reply to @maxraether "I currently have two cavities. One is 1.4 x 0.9 cm and the other one is..." + (show)
Profile picture for maxraether @maxraether

I currently have two cavities. One is 1.4 x 0.9 cm and the other one is 9.5 x 7.1 mm. I’ve had them for two yrs, Two years ago they did a bronchoscopy and found I had Pseudomonas. Pulmonologist gives me a one week antibiotic when I have flareups…which involve me coughing up blood. This last year I’ve had at least three flareups and my recent CT scan said they grew just a little. The doctor wants me to provide sputum samples again ( which are hard for me) and wait 6 months to see if there’s any changes. If there is he wants to do another Bronchoscopy and a biopsy. I’m concerned it could be something worse.

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@maxraether

I’m surprised you’ve been treated for recurrent pseudomonas infections with just one week of antibiotics. I don’t have pseudomonas myself, but many folks here on the forum report much longer treatments.

I wonder if the pseudomonas could be causing your cavities?

Best,

Leslie

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