CAT SCAN - how often?

Thank you, Sue. And one more question…do you take the mucinex and NAC right before you use the Aerobika? Once or twice daily? I appreciate your willingness to share your experiences!

Sue,
Were you ever on arikayce nebulizer?

No, it wasn't a regular part of the protocol back in 2018-9. Now it is considered if you have not converted to MAC negative after 6-9 months of the Big³.
Sue

Neither of these gives quick results like a hit of albuterol.
Both need to be in your system, accompanied by plenty of water, to thin mucus. So by taking them twice daily it doesn't make any difference when you do it in relation to airway clearance.
Have you tried either one yet?
Sue

@meadows I had to look back to see because it has been 5 years. At first, I had CT scans every 3 months because I was quite ill and the lungs were getting worse. During treatment, it was every 6 months. Since I stopped, once roughly each year. My pulmo wants to skip this year unless I have a problem in the next 6 weeks because I have gone the entire year without an exacerbation or a serious asthma attack. (I hope I don't jinx myself by saying this!)

I feel very fortunate that airway clearance and controlling my asthma has kept me pretty healthy.
Sue

Sueinmn, Mentor,
It was terrific to see in your post your condition has improved greatly over the last year, I always read your posts very carefully and have learned so much from you and others in our community. I hope I can follow in your footsteps.
Once I started Airway Clearance and nebbing 3 % Saline in the fall of 2022, the constant, chronic cough eventually disappeared.
I have had two negative cultures for the MAC which was diagnosed in June, 2022, and have been on the Big 3 since Sep, 2023 and after just two months on Arikayce which I started in July, 2023 of this year I am on a path to clear the MAC. My chief complaint is that my breathing capacity has declined and my Pulmonary Team and ID Doc are not able to pinpoint since I have so much going on...COPD/Empha(severe), BE and the MAC. Decided to invest time and energy into Respir. Therapy as you did and waiting to see the results over time. I've had 6 sessions of mild exercise routines.
I'm hoping to at least pinpoint why my shortness of breath seems to be declining and learn more about what I need to. Thanks again for all that you do for our community.
Flo@Frankie160

Sueinmn, Mentor,
It was terrific to see in your post your condition has improved greatly over the last year, I always read your posts very carefully and have learned so much from you and others in our community. I hope I can follow in your footsteps.
Once I started Airway Clearance and nebbing 3 % Saline in the fall of 2022, the constant, chronic cough eventually disappeared.
I have had two negative cultures for the MAC which was diagnosed in June, 2022, and have been on the Big 3 since Sep, 2023 and after just two months on Arikayce which I started in July, 2023 of this year I am on a path to clear the MAC. My chief complaint is that my breathing capacity has declined and my Pulmonary Team and ID Doc are not able to pinpoint since I have so much going on...COPD/Empha(severe), BE and the MAC. Decided to invest time and energy into Respir. Therapy as you did and waiting to see the results over time. I've had 6 sessions of mild exercise routines.
I'm hoping to at least pinpoint why my shortness of breath seems to be declining and learn more about what I need to. Thanks again for all that you do for our community.
Flo@Frankie160

Flo - I am happy to hear that you are not letting the multiple conditions discourage you from trying to reach your personal best.
In addition to the airway clearance, I find it very helpful to do some separate deep breathing or relaxation breathing several times a day. Two particular times are when I sit at my desk to use the computer, and the last thing at night in bed before I sleep.
What kind of exercise are you able to do? Even mild movement like walking can help gently maintain or improve your ability to breathe.
Sue

sue, I do ACT twice a day. My sputum has become less in the last couple of days, Is it a good thing? I'm tired most of the day and feeling sleepy after doing ACT, deep breathing.