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Caregiver Searching for Excellent Info & Resources

Posted by janeecoston @janeecoston, 1 day ago

My husband is 68. He was diagnosed this past December after 2 years of going to other neurologists. He primarily has shuffling feet, slow movements, rigidity and mild balance issues. However, in the last 6 weeks I’ve begun to notice symptoms like anger, apathy and anxiety. I was completely caught off guard thinking I wouldn’t see things like this for a long time. So now I am searching for really good materials to get educated and to find support. I appreciate any recommendations as well as personal advice. Thanks!

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sillyblone | @sillyblone | 1 day ago

Hello Jane,
Welcome .Your husband has alot going on. First off , I would get in touch with the local chapter for Parkinsons and request information which may be helpful with his condition. Have you asked your physician for PT or possibly Speech Therapy? What has his physicians suggested? I will help in anyway I can. My spouse has Parkinsons. Believe me when I say this has been an issue for him since 2013. 🫂 🤗

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1 reply
janeecoston | @janeecoston | 12 hours ago
In reply to @sillyblone "Hello Jane, Welcome .Your husband has alot going on. First off , I would get in..." + (show)
@sillyblone

Hello Jane,
Welcome .Your husband has alot going on. First off , I would get in touch with the local chapter for Parkinsons and request information which may be helpful with his condition. Have you asked your physician for PT or possibly Speech Therapy? What has his physicians suggested? I will help in anyway I can. My spouse has Parkinsons. Believe me when I say this has been an issue for him since 2013. 🫂 🤗

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Thanks for your reply. The local social worker just sent me a few groups to reach out to you and I will after the holiday. He was doing PD PT and about to start Rock Steady Boxing but began having unexplained drops in BP so PT was stopped. He saw a cardiologist, his meds adjusted and cleared. I have asked for a private consult with his physician or someone knowledgeable in the Mayo Neurology department who might give me some insight & expectations on what to do and look for moving forward. I haven’t heard back yet. Now that I realize these behaviors are PD related I will certainly approach the anger with different tactics and responses so I’m sure that will help. It’s just dawning on me that he is starting the process of slipping away from me.

REPLY
1 reply
sillyblone | @sillyblone | 11 hours ago
In reply to @janeecoston "Thanks for your reply. The local social worker just sent me a few groups to reach..." + (show)
@janeecoston

Thanks for your reply. The local social worker just sent me a few groups to reach out to you and I will after the holiday. He was doing PD PT and about to start Rock Steady Boxing but began having unexplained drops in BP so PT was stopped. He saw a cardiologist, his meds adjusted and cleared. I have asked for a private consult with his physician or someone knowledgeable in the Mayo Neurology department who might give me some insight & expectations on what to do and look for moving forward. I haven’t heard back yet. Now that I realize these behaviors are PD related I will certainly approach the anger with different tactics and responses so I’m sure that will help. It’s just dawning on me that he is starting the process of slipping away from me.

Jump to this post

I certainly get it! It looks like you are on top of things. Lots happens as the disease goes through different stages. What I wanted you to know is ask questions and I certainly will answer. Three people in my family have had Parkinsons. They were different symptoms but same outcome. 🫂

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janeecoston | @janeecoston | 4 hours ago

How soon after diagnosis did each truly begin to need daily supervision? What did they each have the most trouble with earliest on?

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