grandpabob
@grandpabob
@grandpabob
Posts: 27
Joined: Nov 10, 2018
@smokie My son received CAR T Cell Transplant 11 mo ago.
He is still cancer free. He is well, but gets very tired.
Does anyone else have this problem? Barb
I am 11 months in as well tiredness has long past for me. Did a lot of exercise to help me get past that.
REPLY 
@JustinMcClanahan @kevin_153, here are a few additional resources should you be interested in researching a bit more about CAR-T trials at Mayo Clinic or a potential second opinion:
– Clinical trials at Mayo Clinic search, https://www.mayo.edu/research/clinical-trials
– If you are interested in inquiring about a potential second opinion at Mayo Clinic, http://mayocl.in/1mtmR63
– Mayo Clinic's CAR-T cell therapy homepage, https://www.mayoclinic.org/departments-centers/car-t-cell-therapy-program/home/orc-20404317
@kevin_153, you mentioned that you relapsed from your stem cell transplant within 10 months. Many members have inquired about the process of undergoing a stem cell transplant, even though you relapsed, are you comfortable sharing your overall experience with your autologous stem cell transplant?
The overall experience was good. There were some very tough days. However, I tried to remain active every day I was in there. I would walk laps no matter how bad I felt. The day my ANC was zero is etched into my memory forever. I did an on-line course while I was in the hospital for a month. It helped to keep me distracted. I was very blessed through the process.
Liked by Justin McClanahan
gkrapohl
@gkrapohl
@gkrapohl
Posts: 1
Joined: Nov 29, 2018
@smokie My son received CAR T Cell Transplant 11 mo ago.
He is still cancer free. He is well, but gets very tired.
Does anyone else have this problem? Barb
I am about 8 months out and I am doing well also. I think one of the biggest side effects I have experienced not only with CAR-T but also multiple rounds of chemo has been fatigue. I can get tired very quickly sometimes and at other times I am fine. I try to take time to rest before I get tired. I have found that it is different for everyone and it just takes time to recover. Graydon
@JustinMcClanahan
In reply to @kevin_153
@kevin_153, here are a few additional resources should you be interested in researching a bit more about CAR-T trials at Mayo Clinic or a potential second opinion:
– Clinical trials at Mayo Clinic search, https://www.mayo.edu/research/clinical-trials
– If you are interested in inquiring about a potential second opinion at Mayo Clinic, http://mayocl.in/1mtmR63
– Mayo Clinic's CAR-T cell therapy homepage, https://www.mayoclinic.org/departments-centers/car-t-cell-therapy-program/home/orc-20404317
@kevin_153, you mentioned that you relapsed from your stem cell transplant within 10 months. Many members have inquired about the process of undergoing a stem cell transplant, even though you relapsed, are you comfortable sharing your overall experience with your autologous stem cell transplant?