Did anyone undergo Car-T therapy for B cell lymphoma?

We take each of those milestone markers with a new sense of hope. ☺️
I had an Allogenic (donor cells) bone marrow transplant for AML. My first big milestone was 22 months. After that point, statistically the likelihood of a relapse diminishes. The big milestone will be at 5 years. I just had my 4th rebirthday the end of June. I’m not even considering that this isn’t a win! ☺️
Keep on being positive and wishing you only the best news going forward. And thanks again for sharing your story. It will be so encouraging for anyone else undergoing Car T.

Thanks so much Lori! Yes, we are fortunate to live in the new world of CAR-T. Still in first year so every three months. For me, the 9 month marker will be important because that is when the DLBCL returned. Don't get me wrong, all markers are important but the longer I'm free in the first year the better the outcome will likely be.

Hi @annberkowitz! You sure got some encouraging news after your Car T therapy! ☺️ I know that feeling of being on top of the world with having a second chance at life. We’re so fortunate to live in a time when Car T therapy, bone marrow transplants and targeted biologics are possible. I can only imagine it will get even better for future generations!
Congratulations to you with your cutting edge of science treatment. How often do you return for followup blood work to monitor your health?

I had CAR T six months ago and had complete response at 30 day checkup. Six months out still cancer free. Feel like myself again.

Had the procedure 6 years ago and relapsed 9 months later. Speaking of cell collection, I had a Hickman catheter surgically implanted in my chest because the veins in my arms couldn’t be used. Believe it or not the device failed the day of cell extraction. Fortunately I had great nurses who were able to extract enough cells through my dried up arm veins. I had no cytokine release problems after the procedure but I believe a terrible reaction to the chemo before the re-engineered cells were reinserted. In hospital for 20 days instead of 10 because my peripheral neuropathy was so bad. After the relapse I found Keytruda a checkpoint inhibitor as my last resort. Merck gave me the drug for free as it was not approved by the FDA as a mercy case. Five years later I am obviously here. Oncologist feels the Re-engineered cells in combo with the checkpoint inhibitor Keytruda gave me more time. Keytruda overstimulated my immune system and is attacking healthy cells causing all kinds of problems in my body. Cytokine release is very common. In this case believe it or not is good. If you don’t have problems like Bob mentioned, the treatment didn’t work and that was me. I think my oncologist knew I would eventually relapse but didn’t mention it as she couldn’t be sure. Anyone with opportunity to get CAR should go for it. There are patients 10 years in. Immunotherapy right now is the gold standard for people like us who were failed by RCHOP.

Yes, my mom has schedul for October 7th to start collect the cell.

She is weak, so we have to ask for pain killer from primary to get better sleep and good appetite. Since her limpthnod is big in stomach are she can eat just a little bit.
We, the family ,worry to she has no energy on procedures. Praying tide for good fight. Thanks you so much for welcome me, yes I am the main care giver.

Umma, I'd like to add my welcome. How is your mom doing? Are you her main caregiver during the CAR-T therapy? Any questions as you prepare to start treatment?

Yes, my mom has schedul for October 7th to start collect the cell.